Past Conferences

 

DCC Conference 2008

Cherry Hill, New Jersey

The 6th DCC Conference held in Cherry Hill, New Jersey introduced the first DCC Conference Dance Night! The New Jersey team, led by Dan Daly and Richard Chamovitz, created a wonderful event. Once again, we were inspired and entertained by Kim Peek (the real Rainman) and his incredibly gracious father, Fran.

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DCC Conference 2007

Dallas, Texas

The 5th DCC Conference held in Dallas, Texas was an fantastic success thanks to incredible work by Dina and Dave Shirk, Jennifer Little and their Texas team! Friday evening was highlighted by the debut of “ACC and Me” as read by Dallas Cowboy Jamaica Rector. The kids (and parents) were delighted!

View the DCC Conference 2007 Slide Show!

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DCC Conference 2006

Irvine, California

The 4th NODCC Conference was held in sunny Southern California at the Irvine Marriott Hotel the last week of July 2006. This was the second time a conference for individuals and families living with a callosal disorder was conducted in California. Billed as the ACC Family Get-Together in 2001 that venue was held in nearby Yorba Linda prior to the organizational formation of the NODCC. A special highlight of this year’s conference were presentations by the extraordinary Mr. Fran Peek and his son, Kim (aged 54), who was born with agenesis of the corpus callosum, macrocephaly and damage to his cerebellum. Kim, a mega-savant with an extraordinary memory, was the inspiration for the character of Raymond Babbit, played by Dustin Hoffman in the movie Rain Man. Everyone who heard Fran’s Saturday morning keynote presentation, Advocating for your Child in Today’s World: A Father’s Story, were touched and inspired and we are deeply grateful to the Peeks for the time they gave to our conference.

The 3-day event was emceed by Richard Chamovitz who is father to Kyle and an attorney in Philadelphia, PA who focuses on representing families with special education issues. Lectures, panel discussions and small workshops included many diverse topics relative to disorders of the corpus callosum, including a very candid lecture on the importance of teaching effective social-sexual education to people with disabilities and life skills workshops for adults diagnosed with a DCC.

For the second year, Continuing Medical Education credits were available to attending physicians and other health professionals in conjunction with U.S. Micron, a leader in accredited programming in the United States. And, through the generosity of PACSGEAR, Inc. and NAI Tech Products conference attendees had the opportunity to have their children’s MRI studies copied on to a personal compact disk for easy transporting of their films.

The Silent Auction was a huge success and we sincerely thank everyone who donated such wonderful gifts to this cause and those who so generously purchased the goods. And, once again the Children’s Program supervised by 70 amazing volunteers and the Teen Program organized by the wonderful graduate students at the Fuller Graduate School of Psychology were a tremendous success. This year we also welcomed nine additional members to the NODCC’s Board of Directors including Kristen Barge, Dan Daly, Guy Harrison, Richard Howell, Jennifer Little, Megan Mutti, Dave Shirk, Lynn Snyder and Doris Webb. They join current board members Warren Brown, Karen Dineen, Ann Eisenberg, Stuart Gilkison, Matt Levi, Paul Moes, Lynn Paul, Elliott Sherr and JoAnne Tully. These are the people who unselfishly give their time and expertise to guide our organization and ensure we are achieving our vision and mission. Special thanks to the many medical and educational professionals who donated their time to present the lectures and workshops that provided us with incredibly valuable information. And, special, special thanks must be given to the Fonseca and McCarthy families and their many friends, neighbors, co-workers and the Alley Cats who gave their valuable time and efforts over the past year to once again make our conference an enriching experience for all who attended. We sincerely thank you for your many hours given unselfishly, your dedication and devotion to our cause.

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DCC Conference 2005

Greenville, South Carolina

Greenville, South Carolina was host to the DCC Conference 2005 held at the lovely Embassy Suites Resort and Golf Club the weekend of July 29th through July 31st, 2006. There were 388 attendees including 111 children under the age of 18. Seven international families came as far as London, England to the east and Sydney, Australia to the west. The festivities began Friday evening as Founders Night relived the history of the NODCC with gratitude expressed to Lynn Paul as founding president, to the founding Board of Directors and a Special Appreciation Award was presented to Gary and Kathy Schilmoeller for their many contributions to the disorders of the corpus callosum community over the years.

For the first time the NODCC offered medical and healthcare professionals the opportunity to earn Continuing Medical Education credits for their attendance at this year’s Conference. Corporate sponsors were secured for the first time to help offset the cost of the conference including the Greenville Hospital System University Medical Center, Bon Secours, the Saint Francis Health System, BMW, Upstate Maternal Fetal Medicine, The Boren Foundation, Greenville East Kiwanis Club, Duke Energy and Bailey’s Sports Grille. And, fourteen exhibitors were on hand to offer information to those parents and children looking for help in many areas of therapy, education, and play. Childcare was available for three age groups throughout the conference. The Red Group for Preschool to early elementary, Green Group for elementary to 12 years, and the Teen Group for ages 13 to 17. A large activity room was also available for indoor organized sports games.

Highlights of childcare included puppet shows and team mascots from the University of South Carolina, Clemson University, The ECHL hockey team Greenville Grrrowl, the minor league baseball team Greenville Bombers along with magic shows by Ronald McDonald and a visit from Buddy Bear, Greenville Children’s Hospital mascot. Along with relatives, friends, and neighbors, additional volunteers from the Greenville East Kiwanis Organization and Hands on Greenville joyfully helped to make the Children and Teen Programs a great success. Medical professionals, researchers, and specialists working in the study of disorders of the corpus callosum offered seminars and lectures on a host of subjects. New information along with expanding research added to the knowledge of many return attendees and furnished a foundation of knowledge for first-time attendees. In addition to medical information, valuable tools for other aspects relative to raising a special needs child were offered.

Our sincere thanks to our South Carolina host family, Cathy and Guy Harrison, for their incredible work in single-handedly organizing their friends and family as volunteers, exhibitors, and childcare program, as well as raising over $9,000 in sponsorship funding and individual donations to offset conference costs. Our thanks also to emcee Mark Richard and Cathy Harrison, Jennifer Cronk, and NODCC members for all the great donations of goods and services provided for our first Silent Auction.

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DCC Conference 2004

Madison, Wisconsin

The ACC Conference 2004, sponsored by the National Organization of Disorders of the Corpus Callosum in collaboration with The ACC Network, took place on August 6 – 8 at the lovely Marriott Madison West Hotel and Conference Center in Madison, Wisconsin. The conference was a huge success as a result of the fantastic organizational efforts of the NODCC’s Conference Committee including our Wisconsin host team coordinators Kristen & Bruce Barge, Debi & Ted Peterson, Joyce & Scott Felicijian, and Terri & Keith Treinen, and the tireless contingency of 110 local volunteers (mostly the team’s families and friends). Our 363 conference attendees this year included individuals with ACC (from infants to young adults), families, and professionals interested in learning more about disorders of the corpus callosum. And, what a wonderful opportunity it was for the 80 children who attended to get the chance to meet other children and siblings whose lives are affected by ACC!

Special conference highlights included our Friday evening special guest, Paul G., a gracious gentleman in his 50’s, born into a family of 18 children, who has been married for over 30 years and is the father of two grown children. He only discovered his agenesis of the corpus callosum in his 30’s and had never met another person with ACC until he met Matt Schilmoeller the month before the conference! Other highlights included presentations by noted medical professionals and researchers who specialize in disorders of the corpus callosum; and heartwarming discussion groups and panels where parents, siblings and individuals with ACC shared their touching life stories.

Old friendships were renewed and new ones formed as families and others gathered to share information, support, and understanding. Our special thanks again to our wonderful Wisconsin team who not only helped plan an incredible event, but also raised over $12,000 locally for the conference.

Here are just a few of the comments shared from the surveys about the ACC Conference 2004.

This conference was an amazing experience for me. When I arrived I didn’t know anyone, but when I left it was like leaving a bunch of good friends. I feel completely recharged and empowered! I can’t wait until next July. Thanks for all the work that went into planning this event!! – Kerstin Clouser, Illinois

The childcare was extraordinary. I felt very comfortable leaving her in the care of the volunteers. Natalie was happy to be there and she seemed to enjoy herself. Knowing she was well cared for left me free to concentrate on the subjects and speakers. We will definitely be there next year. – Janice Jedlenski, Pennsylvania

Thank you for giving us this time to just sit back and relax and not worry about our daughter’s issues. I found that for her age she is doing great and I am not a failure as a mother. Great esteem builder – can’t wait until next year. -Autumn Isaacson, Montana

This is our 2nd year attending the conference and both times we felt we gained very valuable information. It is an extremely educational experience, especially due to the fact that most neurologists don’t have enough patients with ACC to provide parents with answers. The moral support and ideas from other parents are also very helpful. – Linda & Rob Cassol, Maryland

This was our first conference and wished we would have gotten involved before this. Learned a lot and met some wonderful people. We are planning to have our families meet again at next year’s convention. Thank you to everyone on the planning committee and all the wonderful volunteers! – John & Kristen Elmore, Minnesota

This was my first conference and it was invaluable. See you next year! – Carrie Ann Poff, Wisconsin

Thank you, this has been an awesome gift! – Sherry Strafford Rediger, Indiana

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DCC Conference 2003

Tulsa, Oklahoma

The 2003 ACC Conference, sponsored for the first time by the newly formed National Organization of Disorders of the Corpus Callosum, took place on October 10-12 in Tulsa, Oklahoma. Collaboration with The ACC Network, local conference coordinators, Cindy and Eric Linfoot, and a tireless group of volunteers, helped make the conference a huge success. Individuals with ACC (from infants to young adults), families, and professionals interested in learning more about disorders of the corpus callosum attended this year’s conference. Old friendships were renewed and new ones formed as families and others gathered to share information, support, and understanding.

Here are just a few of the comments shared on The ACC Network listserv about the 2003 conference.

I came away from the conference with three things I did not go there with. The first was knowledge, Dr. Brown’s seminar not only gave me information and understanding but information I can share with my daughter’s teachers and medical professionals. The second is that I now feel so much more empowered. I now have a much better understanding of how to approach the school that we’ve been struggling with. And finally, the third is the realization that I am not alone. It’s ok for me to feel the things I do, to react the way I do, and to hope the way I do. – (Posted by Tracy Bost, mom to Kaley, 7, ACC, Ohio)

The Sunday panels were the highlight for me. First, hearing from the kids made me realize the Caleb does have a peer group. They may be scattered all around the country, but there are kids just like him. My heart quickened hearing parents share. For the first time since we learned that Caleb has ACC, I KNEW I was with parents who are just like me, facing the same struggles, and learning to adapt to being in Holland instead of Italy; I cried, clapped, and cheered and when it was over, I KNEW BEYOND A SHADOW OF A DOUBT, that we are not alone.- (Posted by Robin Makapagal, mom to Caleb, 11, C-ACC, Hawaii)

We attended the Tulsa ACC conference, our first. It was a wonderful experience. If you have not attended one, plan to go the next. Our son Josh was the other young man in addition to Matt S. who participated in the Young Adults Panel. He may have looked like he was facing a firing squad for most of the panel but I cannot tell you how important that experience was for him. Thank you to all who were there and who gave these young men and women a standing ovation at the end! That few minutes did more for Josh’s self esteem than hours of therapy. – (Posted by Judy Barker, mom to Josh, 16, C-ACC, New Hampshire)

As always happens after a conference, I feel a mixture of energy and wistfulness. Energy from being with people who are on our same journey;and wistfulness that it will be many months before we all get together again. – (Posted by JoAnne Tully, mom to Kathleen, 15, ACC, Wisconsin)

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The NODCC extends our sincere thanks and gratitude to the families who single-handedly organized family gatherings in their local areas from which the NODCC Conferences evolved.

Beth and Clint Hegney hosted the fourth ACC Family Get-Together in Twin Cities, Minnesota in 2002.

Barbara and Anthony Fonseca hosted the third ACC Family Get-Together in Yorba Linda, California in 2001.

Marci Gale hosted the second ACC Family Get-Together in Ashley, Ohio in 2000.

Eileen and Glen Pelletier hosted the first ACC Family Get-Together in Hebron, Connecticut in 1999.

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NODCC CENTRAL OFFICE

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Phone: (714) 747-0063
Fax: (714) 693-0808
Email: info@nodcc.org
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