Research Proposal Guidelines

National Organization of Disorders of the Corpus Callosum
Guidelines for Research Proposal Submission

The Board of Directors of NODCC feel a responsibility to the individuals with callosal disorders and their families that are attending the annual NODCC conference or are visiting the NODCC web site to ensure that any research connected to NODCC is appropriate, useful, and ethical. Generally, NODCC wishes to host research that: (1) meets criteria for ethical treatment of participants in research; (2) has a good ratio of benefit (important information) to cost (time, effort, etc); and (3) does not overwhelm the conference or web site with research requests. Therefore, the NODCC Scientific Advisory Board will review and approve any research proposals associated with the organization.

To have your project considered, please email a proposal (see below) to Dr. Paul Guilbault, Chair of the NODCC Scientific Advisory Board, at robert.guilbault@louisianaheart.com.

Also, please email (in pdf format) a copy of the signed letter of approval of the research from the Institutional Review Board of your university or hospital.

Format for proposals

1. Abstract – (~250 words)

This section should briefly describe the research. Included should be: a brief statement of the prior research (literature) and rationale forming a foundation for this study; and the research question(s) being asked. Enumerate and state clearly each specific hypothesis.

2. Characteristics of the Research Participants

This section should describe the participant pool (such as number, ages, form of callosal disorder, and range of intelligence/mental status). To whom, if any, will the individuals with callosal disorder be compared?

3. Methodology & Procedures

Describe the methods to be used (location of the study, proposed timeline, and procedures). Also include a description of the instruments to be used, and summary of the protocol for administration. The purpose of this section is to describe what the participants with callosal disorder will be asked to do in your study.

4. Subject Recruitment

This section should describe how subjects will be recruited for the study (copies of advertisements, notices, and other materials should be included).

5. Potential Risks

This section should briefly describe any potential risks — physical, psychological, social, legal, or other — and assess the likelihood and seriousness of each risk. A précis of what was provided to the IRB will suffice.

6. Significance of this Research

Describe what you feel is the potential impact of this research on the lives and well-being of individuals with callosal disorders or their families.

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