This topic contains 2 replies, has 3 voices, and was last updated by Profile photo of barbara barbara 10 months ago.

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  • #1903
    Profile photo of Flora
    Flora
    Member

    Hi I’m a 43 year old female recently diagnosed with ACC. I’m feeling like part of an endangered species looking for others of my kind. Would love to be able to talk to someone who can relate to my experiences. Hope to hear from somebody out there soon.

    #2009
    Profile photo of Jean
    Jean
    Participant

    Hi Flora
    I have just joined this site and I do not have ACC, but I do have a high functioning 27 yr daughter that has Dysgenesis of the CC, and maybe can relate to some of the situations you have been through, knowing what my daughter has been like. Sadly I do not live in CA but in the UK, but have to chat if you wish.
    Jean

    #2020
    Profile photo of barbara
    barbara
    Keymaster

    Hi Flora

    Where are you located in CA. I can look to see if I have someone close to you.

    • This reply was modified 10 months ago by Profile photo of barbara barbara.
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