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    Hi I’m a 43 year old female recently diagnosed with ACC. I’m feeling like part of an endangered species looking for others of my kind. Would love to be able to talk to someone who can relate to my experiences. Hope to hear from somebody out there soon.



    Hi Flora
    I have just joined this site and I do not have ACC, but I do have a high functioning 27 yr daughter that has Dysgenesis of the CC, and maybe can relate to some of the situations you have been through, knowing what my daughter has been like. Sadly I do not live in CA but in the UK, but have to chat if you wish.



    Hi Flora

    Where are you located in CA. I can look to see if I have someone close to you.

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