Bill joined the NODCC Board in July 2025, bringing with him a long-standing personal connection to the organization and a deep commitment to giving back. Bill lives in Yardley, Pennsylvania, and enjoys exercising, yardwork, traveling, golfing, and spending time at the beach.
Bill’s journey with the NODCC began in 2004, when his oldest son was diagnosed with ACC prior to birth. Since that time, the NODCC has been a vital resource for his family. “We’ve always wanted to give back to the organization that has helped us so much over the last 21 years,” Bill shares. As the only organization dedicated specifically to supporting individuals and families impacted by disorders of the corpus callosum, the NODCC holds a special place in his heart.
What Bill enjoys most about serving on the board is learning about the critical work happening across research, advocacy, and fundraising, as well as connecting with fellow board members and hearing their personal stories. One of his most memorable experiences so far was attending his first board meeting in Atlanta, where he found the weekend both inspiring and energizing. “Meeting so many talented individuals who are so committed to improving the lives of families affected by DCC was incredibly motivating,” he says.
Looking ahead, Bill is especially excited about the potential to grow research efforts. He hopes the board can help significantly increase fundraising to expand both the amount and quality of research conducted each year, ultimately leading to better advocacy and outcomes for individuals and families impacted by disorders of the corpus callosum.
Although Bill’s formal Board service is new, he has had direct involvement with us dating back to 2010, when he helped with fundraising for a golf event in New Jersey after attending a conference. That was the first of many With his children now older and his schedule allowing more flexibility, Bill is excited to dedicate more time to volunteer leadership and advancing the NODCC’s mission.
It’s clear Bill is already an asset to our board, and today we’ll leave you with his thoughts on what Bill wishes he could share with every NODCC member: “If you feel that the NODCC has been a valuable resource please support us through either committing financially or committing time to volunteer in whatever areas interest you. This organization is still young and will be able to support so many more families in more meaningful ways if we can get more support from individuals, corporations and foundations.”
