Conference & Events
This event offers expert-led sessions, networking opportunities, and resources to support individuals with DCC at every stage of life.
2026 NODCC Conference
We invite you to join us at the 2026 Disorders of the Corpus Callosum (DCC) Conference, which will be held Thursday, July 23, through Saturday, July 25, in Atlanta, Georgia. Online conference registration will open in early 2026.
Local Gatherings & Fundraisers
Families and friends of the NODCC host local gatherings and fundraisers to bring together those living with a disorder of the corpus callosum and support our community. These events are a great way to meet others in your area, share experiences, and build connections.
While the NODCC helps support and promote these gatherings, they are planned and coordinated by local families. If you’re hosting an event or would like to organize one in your area, we’d love to hear from you! Email us at [email protected] to get started.
Upcoming Community Calls:
Full session descriptions and registration links for each call are included below. Register for the upcoming calls and watch for details on more sessions coming soon!
*All virtual and local event times are listed in Pacific Standard Time (PST)*
- February 14, 2026
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New Beginnings: Support for New and Expecting Parents of Children with DCC
February 14, 2026 11:00 am - 12:00 pm
Facilitator: Heather Will, Admin of ACC Babies Support Groups
11:00 am PST / 12:00 pm MST / 1:00 pm CST / 2:00 pm EST
Register Here: https://us02web.zoom.us/meeting/register/iNiHGZfbRfOTXo_xcnUjiw
Are you a new or expecting parent embarking on the unique journey of raising a child with a disorder of the corpus callosum (DCC)? We understand that this path comes with its own set of questions, concerns, and joys. Join our recurring support call tailored specifically for parents like you, where you’ll find understanding, information, and a supportive community.
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- February 17, 2026
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The Power of Brain Wiring Connections Through Safe Balance Training
February 17, 2026 5:00 pm - 6:00 pm
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Presenter: Dan Metcalfe, Founder of Total Balance
Register Here: https://us02web.zoom.us/meeting/register/KBWAy2mcTQ-jHqNqZGJXfADan Metcalfe - founder of Total Balance - has trained more than 70,000 people to engage brain-to-body activation and growth in neurological connections. His background is fascinating, coming from playing the Lead in Andrew Lloyd Webber shows to being paralyzed on stage and told he would be disabled for life. He fully recovered, only to suffer a partial brain death while out riding a bike. He had to learn to speak again properly, physically function with loss of neural connections, and went to work discovering real-life solutions for brain-to-body improvement. He went on to become an expert, recognized globally, for his dynamic results in helping improve quality of life through brain-focused development. One story he loves to share is about Ella, a young 13 year old with ACC, who he worked with to improve her balance. She went on to improve so much she went to dances, improved her everyday mobility and her confidence grew as it should into high school. Sue was already a very smart young lady, and she deserved the ability to walk the world she dreamed of unafraid. And the results were such a joy for her parents too.
Come meet Dan. As a keynote speaker, he brings powerful insight, real-world experience, and a trusted voice—delivered with the energy and passion to inspire meaningful change. He’ll also host an open Q&A at the end, giving you the chance to engage directly. This uplifting experience will leave you energized, focused on the best years ahead, and equipped to add real quality to your life.
*This Webinar will be recorded and published on the NODCC YouTube channel. If you do not wish for your image to appear in the recording, please keep your camera turned off during the session.*
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- February 19, 2026
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Natural History Study - The Power of Patient Experience
February 19, 2026 5:00 pm - 6:00 pm
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Presenters: Ella Bohlman, B.S. and Lynn K. Paul, Ph.D.
Register Here: https://us02web.zoom.us/meeting/register/Z-MSZd3oQ82nQ9nWCV5DdA
“Have you ever wondered ….?”
Why don’t doctors know anything about this diagnosis?!
Is this ‘normal’ for a child with DCC?
When should we get another MRI?
When should we go back to the neurologist?
Should we get genetic testing?
Why aren’t people with DCC more similar? Does DCC really matter?
Was participating in that research study a waste of time?
What can I do to help my child succeed?
Attend the Webinar on February 19th…to learn how NODCC is working with scientists to answer these questions.
Lynn K. Paul will give an update about the status of DCC research in the United States. Ella Bohlman will present a portion of her findings from the Natural History fellowship supported by NODCC.
*This Webinar will be recorded and published on the NODCC YouTube channel. If you do not wish for your image to appear in the recording, please keep your camera turned off during the session.*
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- February 21, 2026
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Teen Talk: Connecting Teens Living with DCC
February 21, 2026
9:00 am PST / 10:00 am MST / 11:00 am CST / 12:00 pm EST
Facilitator: Jasmin M. Turner, MA in Clinical Psychology, NODCC Board Member 2024-2027 and Alexa Smith, Adult with a DCC
Register Here: https://us02web.zoom.us/meeting/register/MGst5LyZQfaCTzMnbKUXcQ
Join us for a fun “Show and Tell” Zoom session to help us get to know each other better! Please come prepared to share something: a favorite item, a fun photo, or a brief story that tells us a little about who you are. We’re excited to learn more about you!
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- February 24, 2026
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Moms' Circle: Support and Sharing for Children Living with DCC
February 24, 2026 5:00 pm - 6:00 pm
Facilitator: Jana Shaffner, Mom of C-ACCer, Career Advisor
Register Here: https://us02web.zoom.us/meeting/register/J2wPrU50ReSLjDPycbgiEA
Are you a mother navigating the unique journey of raising someone with a Disorder of the Corpus Callosum? We understand the challenges you face and the importance of connecting with others who share similar experiences. Join our recurring monthly support call, a safe and supportive space designed exclusively for mothers like you.
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- February 25, 2026
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Adults Connect: Living with DCC
February 25, 2026 5:00 pm - 6:00 pm
Facilitator: Jasmin M. Turner, MA in Clinical Psychology, NODCC Board Member 2024-2027
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Register Here: https://us02web.zoom.us/meeting/register/gJ_w4gFARgi2ovcpqQtnTA
This month, we will be talking about life hacks, simple tools, strategies, or tips that make everyday life a little easier. Come ready to share a few of your favorite hacks! By the end of the call, we’ll have a list of DCC adult life hacks we can all use.
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Join Our Facebook Groups:
- NODCC Region 1 – NH, MA, ME, RI, VT
- NODCC Region 2 – NY, Puerto Rico, NJ
- NODCC Region 3 – DE, MD, District of Columbia, VA, WV, PA
- NODCC Region 4 – AL, GA, KY, SC, FL, NC, TN, MS
- NODCC Region 5 – WI, OH, MN, IL, IN, MI
- NODCC Region 6 – AR, LA, NM, OK, TX
- NODCC Region 7 – IA, KS, MO, NE
- NODCC Region 8 – CO, MT, ND, SD, UT, WY
Prior NODCC Conference Recordings
Past Conferences
The Disorders of the Corpus Callosum (DCC) Conference was held yearly until 2010. The international event is now held every other year and rotates around to various regions of the country.
The NODCC extends our sincere thanks and gratitude to the families who organized family gatherings in their local areas from which the NODCC Conferences evolved.
2024 Chicago, Illinois
2022 Frisco, Texas
2018 Costa Mesa, California
2016 Chicago, Illinois
2014 Boston, Massachusetts
2012 San Antonio, Texas
2010 Santa Rosa, California
2009 Indianapolis, Indiana
2008 Cherry Hill, New Jersey
2007 Dallas, Texas
2006 Irvine California
2005 Greenville, South Carolina
2004 Madison, Wisconsin
2003 Tulsa, Oklahoma
2002 Twin Cities, Minnesota
2001 Yorba Linda, California
2000 Ashley, Ohio
1999 Hebron, Connecticut