Conference & Events
This event offers expert-led sessions, networking opportunities, and resources to support individuals with DCC at every stage of life.
2026 NODCC Conference
We invite you to join us at the 2026 Disorders of the Corpus Callosum (DCC) Conference, which will be held Thursday, July 23, through Saturday, July 25, in Atlanta, Georgia. Online conference registration will open in early 2026.
Local Gatherings & Fundraisers
Families and friends of the NODCC host local gatherings and fundraisers to bring together those living with a disorder of the corpus callosum and support our community. These events are a great way to meet others in your area, share experiences, and build connections.
While the NODCC helps support and promote these gatherings, they are planned and coordinated by local families. If you’re hosting an event or would like to organize one in your area, we’d love to hear from you! Email us at [email protected] to get started.
Upcoming Community Calls:
Full session descriptions and registration links for each call are included below. Register for the upcoming calls and watch for details on more sessions coming soon!
*All virtual and local event times are listed in Pacific Standard Time (PST)*
- May 19, 2026
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Natural History Study - Supporting Development: Intervention and Treatment in the Early Years
May 19, 2026 5:00 pm - 5:30 pm
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Presenters: Ella Bohlman, B.S. and Lynn K. Paul, Ph.D.
Join us for Part 3 of our 4-part Natural History Research Webinar Series: “Supporting Development: Intervention and Treatment in the Early Years.”
Natural History research helps bridge the gap between patient experience and professional expertise by transforming real-life stories into the empirical evidence that informs medical, therapeutic, and educational care.
Through the Natural History Fellowship, sponsored by NODCC, researchers are working to turn families’ experiences into knowledge that helps professionals better understand the wide range of outcomes in Disorders of the Corpus Callosum (DCC).
This session focuses on early development, including:
- Developmental milestones
- Therapies
- Early intervention
Whether you are a family member, self-advocate, clinician, educator, or researcher, this webinar will provide valuable insights into patterns that may shape early development and long-term outcomes in DCC.
Register Here: https://us02web.zoom.us/meeting/register/3IqZI5PKTs6ZsnKHrp5oIQ
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- May 21, 2026
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The Motherhood Experience: A Moms Panel
May 21, 2026 2:00 pm - 3:00 pm
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Join us for a meaningful conversation centered on the motherhood experience in raising a child with a DCC. This moms panel will discuss the grief cycle, moving from the “loss” of the expected child to celebrating the actual child, the reality of self-care vs. survival and caregiver burnout, and the impact rare-disease parenting can have on siblings and family dynamics.
This webinar is designed to provide honest discussion, encouragement, and connection for mothers walking a similar journey.
Register Here: https://us02web.zoom.us/meeting/register/b9cw701rRdSMAIDpIBZH_g
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- May 26, 2026
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Moms' Circle: Support and Sharing for Children Living with DCC
May 26, 2026 5:00 pm - 6:00 pm
Facilitator: Deona Kalala, NODCC President 2024-2026
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Are you a mother navigating the unique journey of raising someone with a Disorder of the Corpus Callosum? We understand the challenges you face and the importance of connecting with others who share similar experiences. Join our recurring monthly support call, a safe and supportive space designed exclusively for mothers like you.Register Here: https://us02web.zoom.us/meeting/register/J2wPrU50ReSLjDPycbgiEA
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- May 27, 2026
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Adults Connect: Living with DCC
May 27, 2026 5:00 pm - 6:00 pm
Facilitator: Jasmin M. Turner, MA in Clinical Psychology, NODCC Board Member 2024-2027
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Join us for a special call tailored to adults living with DCC. This gathering is a safe space for individuals to share experiences, find support, and explore strategies for thriving in a world that may not always understand the challenges and strengths that come with DCC. Together, we will celebrate our unique journeys, resilience, and the power of community.Register Here: https://us02web.zoom.us/meeting/register/gJ_w4gFARgi2ovcpqQtnTA
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- May 30, 2026
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Grandparents’ Wisdom: Navigating the DCC Journey
May 30, 2026 8:30 am - 9:30 am
Facilitator: Kathe Gee, NODCC Board Member 2025-2028
8:30 am PST / 9:30 am MST / 10:30 am CST / 11:30 am EST
Grandparents play an invaluable role in the lives of individuals with Disorders of the Corpus Callosum (DCC). This webinar is designed to provide grandparents with a deeper understanding of DCC, offer insights into supporting their grandchildren, and foster a sense of community among fellow grandparents facing similar experiences.Register Here: https://us02web.zoom.us/meeting/register/VaVG9TvWQHaLO-oyeCgqwA
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Join Our Facebook Groups:
- NODCC Region 1 – NH, MA, ME, RI, VT
- NODCC Region 2 – NY, Puerto Rico, NJ
- NODCC Region 3 – DE, MD, District of Columbia, VA, WV, PA
- NODCC Region 4 – AL, GA, KY, SC, FL, NC, TN, MS
- NODCC Region 5 – WI, OH, MN, IL, IN, MI
- NODCC Region 6 – AR, LA, NM, OK, TX
- NODCC Region 7 – IA, KS, MO, NE
- NODCC Region 8 – CO, MT, ND, SD, UT, WY
Prior NODCC Conference Recordings
Past Conferences
The Disorders of the Corpus Callosum (DCC) Conference was held yearly until 2010. The international event is now held every other year and rotates around to various regions of the country.
The NODCC extends our sincere thanks and gratitude to the families who organized family gatherings in their local areas from which the NODCC Conferences evolved.
2024 Chicago, Illinois
2022 Frisco, Texas
2018 Costa Mesa, California
2016 Chicago, Illinois
2014 Boston, Massachusetts
2012 San Antonio, Texas
2010 Santa Rosa, California
2009 Indianapolis, Indiana
2008 Cherry Hill, New Jersey
2007 Dallas, Texas
2006 Irvine California
2005 Greenville, South Carolina
2004 Madison, Wisconsin
2003 Tulsa, Oklahoma
2002 Twin Cities, Minnesota
2001 Yorba Linda, California
2000 Ashley, Ohio
1999 Hebron, Connecticut