Local Events & Community Calls
Families and friends of the NODCC host local gatherings and fundraisers to connect those living with a disorder of the corpus callosum and support the organization. If you have a local gathering to include in the calendar or would like to host an event,
please contact Barb Fonseca at info@nodcc.org.
Upcoming Community Calls:
Full session descriptions and registration links for each call are included below.
Register for the upcoming calls and watch for details on more sessions coming soon!
*All virtual and local event times are listed in Pacific Standard Time (PST)*
- August 18, 2026
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IEP Process…Don’t Be Afraid! Be an Integral Part of Constructing Your Child’s IEP
August 18, 2026 5:00 pm - 6:00 pm
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Presenter: Lauri White MEd, NODCC Board Member 2025-2028
The Individualized Education Plan is meant to help your child learn and reach their academic goals. But does it? This webinar will educate parents on each area of the IEP. We will dive into how each present level assessed should build the IEP. We will discuss the importance of parental input on goals and accommodations and empower parents to give input effectively to the team to ensure your child receives the necessary services needed to be successful.
Register Here: https://us02web.zoom.us/meeting/register/iPK5OguFTL2sDIzsJHdWhA
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- August 22, 2026
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Teen Talk: Self-Advocacy 101: How to Ask for What You Need
August 22, 2026 12:00 pm - 1:00 pm
Facilitator: Lexy Smith and Allie Calverley, Social Work Students & Adults Living with DCC, Michael Guaimas, Undergraduate Student and Research Assistant at Washington University in St. Louis, Class of 2027
12:00 pm PST / 1:00 pm MST / 2:00 pm CST / 3:00 pm EST
Speaking up for yourself can feel challenging, but it's an important skill. Join us as we talk about self-advocacy, building confidence, and practical ways to ask for the support, accommodations, and understanding you need at school, at home, and in everyday life.
Register Here: https://us02web.zoom.us/meeting/register/k-PoO9QQQ8elIxrDn6-imA
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- August 25, 2026
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Moms' Circle: Support and Sharing for Children Living with DCC
August 25, 2026 5:00 pm - 6:00 pm
Facilitator: Jana Shaffner, Mom of C-ACCer, Career Advisor
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Are you a mother navigating the unique journey of raising someone with a Disorder of the Corpus Callosum? We understand the challenges you face and the importance of connecting with others who share similar experiences. Join our recurring monthly support call, a safe and supportive space designed exclusively for mothers like you.Register Here: https://us02web.zoom.us/meeting/register/J2wPrU50ReSLjDPycbgiEA
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- August 26, 2026
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Adults Connect: Living with DCC
August 26, 2026 5:00 pm - 6:00 pm
Facilitator: Jasmin M. Turner, MA in Clinical Psychology, NODCC Board Member 2024-2027
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Conference may be over, but the connections don't have to end! Join us as we reflect on our favorite moments, share our biggest takeaways, and continue the conversations from the 2026 conference.Whether you attended or not, all adults in the DCC community are welcome. Come reconnect, meet new friends, and stay connected beyond the conference!
Register Here: https://us02web.zoom.us/meeting/register/gJ_w4gFARgi2ovcpqQtnTA
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Local Gatherings & Fundraisers
Families and friends of the NODCC host local gatherings and fundraisers to bring together those living with a disorder of the corpus callosum and support our community. These events are a great way to meet others in your area, share experiences, and build connections.
While the NODCC helps support and promote these gatherings, they are planned and coordinated by local families. If you’re hosting an event or would like to organize one in your area, we’d love to hear from you! Email us at info@nodcc.org to get started.
Join Our Facebook Groups:
- NODCC Region 1 – NH, MA, ME, RI, VT
- NODCC Region 2 – NY, Puerto Rico, NJ
- NODCC Region 3 – DE, MD, District of Columbia, VA, WV, PA
- NODCC Region 4 – AL, GA, KY, SC, FL, NC, TN, MS
- NODCC Region 5 – WI, OH, MN, IL, IN, MI
- NODCC Region 6 – AR, LA, NM, OK, TX
- NODCC Region 7 – IA, KS, MO, NE
- NODCC Region 8 – CO, MT, ND, SD, UT, WY
Prior NODCC Conference Recordings
Past Conferences
The Disorders of the Corpus Callosum (DCC) Conference was held yearly until 2010. The international event is now held every other year and rotates around to various regions of the country.
The NODCC extends our sincere thanks and gratitude to the families who organized family gatherings in their local areas from which the NODCC Conferences evolved.
2024 Chicago, Illinois
2022 Frisco, Texas
2018 Costa Mesa, California
2016 Chicago, Illinois
2014 Boston, Massachusetts
2012 San Antonio, Texas
2010 Santa Rosa, California
2009 Indianapolis, Indiana
2008 Cherry Hill, New Jersey
2007 Dallas, Texas
2006 Irvine California
2005 Greenville, South Carolina
2004 Madison, Wisconsin
2003 Tulsa, Oklahoma
2002 Twin Cities, Minnesota
2001 Yorba Linda, California
2000 Ashley, Ohio
1999 Hebron, Connecticut