This topic contains 3 replies, has 4 voices, and was last updated by  Sherie 3 months, 3 weeks ago.

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  • Author
    Posts
  • #1903

    Flora
    Member

    Hi I’m a 43 year old female recently diagnosed with ACC. I’m feeling like part of an endangered species looking for others of my kind. Would love to be able to talk to someone who can relate to my experiences. Hope to hear from somebody out there soon.

    #2009

    Jean
    Member

    Hi Flora
    I have just joined this site and I do not have ACC, but I do have a high functioning 27 yr daughter that has Dysgenesis of the CC, and maybe can relate to some of the situations you have been through, knowing what my daughter has been like. Sadly I do not live in CA but in the UK, but have to chat if you wish.
    Jean

    #2020

    barbara
    Keymaster

    Hi Flora

    Where are you located in CA. I can look to see if I have someone close to you.

    #2226

    Sherie
    Participant

    Hi,
    My son is 25 and has ACC, we are from So. CAl but now live in Idaho. He was diagnosed at 19 days old but he or I would be happy to talk with you if you have questions or just need someone who understands. God bless you. Sherie

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