Welcome to the NODCC

Where knowledge meets compassion—
supporting individuals and families affected by DCC.

Whether you are seeking a diagnosis, navigating daily challenges, or looking for ways to connect with others on a similar journey, we are here to help. Explore our resources, connect with our community, and join us in making a difference.

Resources Center

Arrow Button

Newly
Diagnosed

Arrow Button

Blog & Stories

Arrow Button
welcome-to-nodcc-img
light-bulb-icon
Disorders of the Corpus Callosum affect roughly
1 out of 2,053 individuals

Who We Are

At NODCC, we are committed to raising awareness, supporting research, providing reliable information, and fostering a supportive community for individuals with disorders of the corpus callosum (DCC) and their families.

Through our website, booklets, videos, and pamphlets, we provide reliable resources for families and professionals. Our biennial international conference brings experts and families together to learn, connect, and collaborate. We also support and promote research efforts to deepen understanding and improve outcomes for individuals with DCC. Most importantly, we cultivate a strong, supportive community—because no one should navigate this journey alone.

Our Mission

Our mission is to enhance the quality of life and promote opportunities for individuals with disorders of the corpus callosum and raise the profile, understanding and acceptance of these disorders through education, advocacy, networking, and research.

Resources & Support

Start Here

Not sure where to begin? Start here.

Explore key resources, connect with our community, and find the information you need to navigate DCC. Whether you’re newly diagnosed, looking for expert insights, or seeking support, these quick links will guide you to essential tools, research, and ways to get involved. You’re not alone—we’re here to help.

resource-center-icon

Resource Center

Explore trusted information on DCC.

helpful-links-icon

Helpful Links

Quick access to key resources.
faqs-icon

FAQs

Answers to common questions about DCC.
printable-materials-icon

Printable Materials

Download booklets, guides, and more.
nodcc-store-icon

NODCC Store

Shop for educational and awareness materials and swag.
events-icon

Live & Virtual Events

Connect with the community near you and online.

Get Involved

Join us in making a difference for individuals and families affected by DCC. Whether you want to volunteer, donate, advocate, or connect with others, there are many ways to support our mission.
Membership-icon

Membership

volunteer-icon

Volunteering

ways-to-give-icon

Ways to Give

advocacy-icon

Advocacy

fundraising-icon

Fundraising

NODCC Social Media

The NODCC maintains multiple social media channels that contain loads of information and resources. Follow us to stay updated!

    Blogs & Stories

    Stay up to date with the latest happenings from the NODCC and the broader DCC community. From organizational updates and awareness campaigns to research highlights and upcoming events, this section keeps you informed and connected. Check back often for new updates!

    Researcher’s Corner Feature: Dr. Lauren D. Haisley, Pediatric Neuropsychologist/Assistant Professor of Pediatrics at the University of Minnesota and Medical Director of the Masonic Institute for the Developing Brain (MIDB) Clinic

    Researcher’s Corner Feature: Dr. Lauren D. Haisley, Pediatric Neuropsychologist/Assistant Professor of Pediatrics at the University of Minnesota and Medical Director of the Masonic Institute for the Developing Brain (MIDB) Clinic

    Friends – Finding Them and Keeping Them: A Guide to Navigating the People in Your Life

    Friends – Finding Them and Keeping Them: A Guide to Navigating the People in Your Life

    Spotlight on Board Member Layton Shaffner

    Spotlight on Board Member Layton Shaffner

    No results found.

    Upcoming Virtual and Community

    *All virtual and local event times are listed in Pacific Standard Time (PST)*

    October 11, 2025
    • New and Expecting Parents Call

      October 11, 2025  11:00 am - 12:00 pm

      Facilitator: Heather Will, Admin of ACC Babies Support Groups
      Are you a new or expecting parent embarking on the unique journey of raising a child with a disorder of the corpus callosum (DCC)? We understand that this path comes with its own set of questions, concerns, and joys. Join our recurring support call tailored specifically for parents like you, where you’ll find understanding, information, and a supportive community. 
       
      Register Here: https://us02web.zoom.us/meeting/register/GD_itwQqRyG4WeA5XCNsJQ

      See more details

    October 16, 2025
    • North Texas NODCC Par 3 Golf Scramble

      October 16, 2025  2:00 pm - 5:00 pm

      When: October 16, 2025 from 4-7 PM
      Where: THE SWING @ PGA Frisco
      3255 PGA Parkway, Frisco, TX

      Join us at PGA Frisco for the North Texas NODCC Par 3 Golf Scramble — a fun, family-friendly evening supporting North Texas families impacted by Corpus Callosum Disorders 🧠

      Whether you golf or just come for the food and company, your presence makes a difference.

      Click here to register: https://givebutter.com/NTXGolf

      See more details

    October 18, 2025
    • Cumberland, RI Gathering

      October 18, 2025  8:00 am - 10:00 am

      Come share a light breakfast, meet local families, and be part of building a strong community together!

      📅 When: Saturday, October 18, 2025
      ⏰ Time: 10:00 AM
      📍 Where: Cumberland, RI
      💙 Hosted by: Teresa Reilly

      📨 Email [email protected] to RSVP and receive location details.

      On the menu: fruit, bagels, muffins, coffee, and juice. 🥯☕

      We can’t wait to see you there!

      See more details

    October 22, 2025
    • Your Productivity Map: A Practical Framework for Getting Unstuck

      October 22, 2025  5:00 pm - 6:00 pm

      5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST

      Presenter: Dr. Matt Jarman, productivity psychologist, ADHD coach, former psychology professor, and has been teaching productivity for almost 20 years. Matt considers ADHD his superpower.

      Register Here: https://us02web.zoom.us/meeting/register/Icb8kiC2TWGa_6-glJyMZg

      If you struggle to get your work done, trying harder isn’t the answer. You first need to know which of the 4 key productivity drivers are holding you back before you can find your path forward.

      This workshop is for you if…

      • You find yourself stuck in your work, making little progress and unsure what to do about it.
      • You struggle with procrastination and distractions.
      • You feel like ADHD or other executive function challenges are holding you back.

      In this workshop, Dr. Matt Jarman will teach you how to identify which of the 4 drivers of productivity are holding you back and how to change that.

      What You’ll Learn:

      I’m excited to share with you my Productivity Dashboard Framework. Once you understand its 4 productivity factors, you’ll have the knowledge and tools needed to identify what techniques will allow you to do your best work and actually enjoy the process.

      In this workshop, I’ll focus on the following:

      1. What actually drives productivity? Once you understand the 4 drivers of productivity, you’ll see your work through new eyes.
      2. How to identify what’s holding you back. Ask yourself a few simple questions to determine which of the 4 factors are holding you back. You’ll receive a handout that makes this easy.
      3. How to identify a path forward. Once you know which specific factors are holding you back, you’ll know which types of techniques are likely to help. I’ll give you some sample techniques.
      4. You CAN be productive with ADHD! The 4 productivity drivers apply to everyone, though they’re particularly important for people struggling with ADHD and related productivity challenges. Throughout the workshop, I’ll explain how the framework applies to ADHD.

      The overarching goal of the workshop is to give you a simple and practical new tool (the Productivity Dashboard) that you can immediately use to troubleshoot and improve your own productivity.

      *This seminar will be recorded and published on the NODCC YouTube channel. If you do not wish for your image to appear in the recording, please keep your camera turned off during the session.*

      See more details

    October 25, 2025
    • Southern California Gathering

      October 25, 2025  4:00 pm - 7:00 pm

      When: Saturday, October 25, 2025

      Time: 4-7pm

      Where: 14731 Holly Oak Ave, Irvine, CA 92606

      RSVP: Contact Lisa Carnevale at [email protected].

      Please include the number of people attending.

      Dinner will be provided.

      You are invited to join us for an early dinner and to connect 

      with DCC families in the Southern California area.

      See more details

    October 27, 2025
    • Dads' Forum: Strength and Support for Families with DCC

      October 27, 2025  5:00 pm - 6:00 pm

      Facilitator: Ilunga Kalala, Attorney 
      Attention fathers: Are you navigating the unique challenges of parenting someone with a disorder of the corpus callosum (DCC)? We recognize the importance of creating a space where fathers can connect, share experiences, and support one another. Join our recurring support call tailored specifically for fathers of children with DCC.

      Register here: https://us02web.zoom.us/meeting/register/at7Y9fVAS_eXdBD25LLbUg

      See more details

    October 28, 2025
    • Moms' Circle: Support and Sharing for Children Living with DCC

      October 28, 2025  5:00 pm - 6:00 pm

      5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST


      Facilitator: Jana Shaffner, Mom of C-ACCer, Career Advisor 

      Are you a mother navigating the unique journey of raising someone with a Disorder of the Corpus Callosum? We understand the challenges you face and the importance of connecting with others who share similar experiences. Join our recurring monthly support call, a safe and supportive space designed exclusively for mothers like you.

      Register Here: https://us02web.zoom.us/meeting/register/4_iUsErcSvOeK2VQbezuBA

      See more details

    October 29, 2025
    • Adults Connect: Living with DCC

      October 29, 2025  5:00 pm - 6:00 pm

      5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
      Facilitator: Jasmin M. Turner, MA in Clinical Psychology, NODCC Board Member 2024-2027

      Join us for a special call tailored to adults living with DCC. This gathering is a safe space for individuals to share experiences, find support, and explore strategies for thriving in a world that may not always understand the challenges and strengths that come with DCC. Together, we will celebrate our unique journeys, resilience, and the power of community.

      Register Here: https://us02web.zoom.us/meeting/register/Zbzu2PMMT5SHvTWnTFyfvQ

      See more details

    Newsletter Sign Up

    Sign up for our newsletter to receive the latest updates, research highlights, community stories, and upcoming events. Stay informed and connected with the DCC community—delivered straight to your inbox!

    See past newsletters here!

    "*" indicates required fields

    This field is for validation purposes and should be left unchanged.

    Meet Our Partners