Welcome to the NODCC
Where knowledge meets compassion—
supporting individuals and families affected by DCC.
Whether you are seeking a diagnosis, navigating daily challenges, or looking for ways to connect with others on a similar journey, we are here to help. Explore our resources, connect with our community, and join us in making a difference.
1 out of 2,053 individuals
Who We Are
At NODCC, we are committed to raising awareness, supporting research, providing reliable information, and fostering a supportive community for individuals with disorders of the corpus callosum (DCC) and their families.
Through our website, booklets, videos, and pamphlets, we provide reliable resources for families and professionals. Our biennial international conference brings experts and families together to learn, connect, and collaborate. We also support and promote research efforts to deepen understanding and improve outcomes for individuals with DCC. Most importantly, we cultivate a strong, supportive community—because no one should navigate this journey alone.
Our Mission
Our mission is to enhance the quality of life and promote opportunities for individuals with disorders of the corpus callosum and raise the profile, understanding and acceptance of these disorders through education, advocacy, networking, and research.
Resources & Support
Start Here
Not sure where to begin? Start here.
Explore key resources, connect with our community, and find the information you need to navigate DCC. Whether you’re newly diagnosed, looking for expert insights, or seeking support, these quick links will guide you to essential tools, research, and ways to get involved. You’re not alone—we’re here to help.
Resource Center
Explore trusted information on DCC.
Helpful Links
FAQs
Printable Materials
NODCC Store
Live & Virtual Events
Get Involved
Membership
Volunteering
Ways to Give
Advocacy
Fundraising
NODCC Social Media
The NODCC maintains multiple social media channels that contain loads of information and resources. Follow us to stay updated!
Blogs & Stories
Stay up to date with the latest happenings from the NODCC and the broader DCC community. From organizational updates and awareness campaigns to research highlights and upcoming events, this section keeps you informed and connected. Check back often for new updates!

Researcher’s Corner Feature: Dr. Lauren D. Haisley, Pediatric Neuropsychologist/Assistant Professor of Pediatrics at the University of Minnesota and Medical Director of the Masonic Institute for the Developing Brain (MIDB) Clinic

Friends – Finding Them and Keeping Them: A Guide to Navigating the People in Your Life

Spotlight on Board Member Layton Shaffner
Upcoming Virtual and Community
*All virtual and local event times are listed in Pacific Standard Time (PST)*
- October 11, 2025
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New and Expecting Parents Call
October 11, 2025 11:00 am - 12:00 pm
Facilitator: Heather Will, Admin of ACC Babies Support Groups
Are you a new or expecting parent embarking on the unique journey of raising a child with a disorder of the corpus callosum (DCC)? We understand that this path comes with its own set of questions, concerns, and joys. Join our recurring support call tailored specifically for parents like you, where you’ll find understanding, information, and a supportive community.
Register Here: https://us02web.zoom.us/meeting/register/GD_itwQqRyG4WeA5XCNsJQ
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- October 16, 2025
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North Texas NODCC Par 3 Golf Scramble
October 16, 2025 2:00 pm - 5:00 pm
When: October 16, 2025 from 4-7 PM
Where: THE SWING @ PGA Frisco
3255 PGA Parkway, Frisco, TXJoin us at PGA Frisco for the North Texas NODCC Par 3 Golf Scramble — a fun, family-friendly evening supporting North Texas families impacted by Corpus Callosum Disorders 🧠
Whether you golf or just come for the food and company, your presence makes a difference.
Click here to register: https://givebutter.com/NTXGolf
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- October 18, 2025
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Cumberland, RI Gathering
October 18, 2025 8:00 am - 10:00 am
Come share a light breakfast, meet local families, and be part of building a strong community together!
📅 When: Saturday, October 18, 2025
⏰ Time: 10:00 AM
📍 Where: Cumberland, RI
💙 Hosted by: Teresa Reilly📨 Email [email protected] to RSVP and receive location details.
On the menu: fruit, bagels, muffins, coffee, and juice. 🥯☕
We can’t wait to see you there!
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- October 22, 2025
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Your Productivity Map: A Practical Framework for Getting Unstuck
October 22, 2025 5:00 pm - 6:00 pm
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Presenter: Dr. Matt Jarman, productivity psychologist, ADHD coach, former psychology professor, and has been teaching productivity for almost 20 years. Matt considers ADHD his superpower.
Register Here: https://us02web.zoom.us/meeting/register/Icb8kiC2TWGa_6-glJyMZg
If you struggle to get your work done, trying harder isn’t the answer. You first need to know which of the 4 key productivity drivers are holding you back before you can find your path forward.
This workshop is for you if…
- You find yourself stuck in your work, making little progress and unsure what to do about it.
- You struggle with procrastination and distractions.
- You feel like ADHD or other executive function challenges are holding you back.
In this workshop, Dr. Matt Jarman will teach you how to identify which of the 4 drivers of productivity are holding you back and how to change that.
What You’ll Learn:
I’m excited to share with you my Productivity Dashboard Framework. Once you understand its 4 productivity factors, you’ll have the knowledge and tools needed to identify what techniques will allow you to do your best work and actually enjoy the process.
In this workshop, I’ll focus on the following:
- What actually drives productivity? Once you understand the 4 drivers of productivity, you’ll see your work through new eyes.
- How to identify what’s holding you back. Ask yourself a few simple questions to determine which of the 4 factors are holding you back. You’ll receive a handout that makes this easy.
- How to identify a path forward. Once you know which specific factors are holding you back, you’ll know which types of techniques are likely to help. I’ll give you some sample techniques.
- You CAN be productive with ADHD! The 4 productivity drivers apply to everyone, though they’re particularly important for people struggling with ADHD and related productivity challenges. Throughout the workshop, I’ll explain how the framework applies to ADHD.
The overarching goal of the workshop is to give you a simple and practical new tool (the Productivity Dashboard) that you can immediately use to troubleshoot and improve your own productivity.
*This seminar will be recorded and published on the NODCC YouTube channel. If you do not wish for your image to appear in the recording, please keep your camera turned off during the session.*
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- October 25, 2025
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Southern California Gathering
October 25, 2025 4:00 pm - 7:00 pm
When: Saturday, October 25, 2025
Time: 4-7pm
Where: 14731 Holly Oak Ave, Irvine, CA 92606
RSVP: Contact Lisa Carnevale at [email protected].
Please include the number of people attending.
Dinner will be provided.
You are invited to join us for an early dinner and to connect
with DCC families in the Southern California area.
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- October 27, 2025
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Dads' Forum: Strength and Support for Families with DCC
October 27, 2025 5:00 pm - 6:00 pm
Facilitator: Ilunga Kalala, Attorney
Attention fathers: Are you navigating the unique challenges of parenting someone with a disorder of the corpus callosum (DCC)? We recognize the importance of creating a space where fathers can connect, share experiences, and support one another. Join our recurring support call tailored specifically for fathers of children with DCC.Register here: https://us02web.zoom.us/meeting/register/at7Y9fVAS_eXdBD25LLbUg
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- October 28, 2025
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Moms' Circle: Support and Sharing for Children Living with DCC
October 28, 2025 5:00 pm - 6:00 pm
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Facilitator: Jana Shaffner, Mom of C-ACCer, Career AdvisorAre you a mother navigating the unique journey of raising someone with a Disorder of the Corpus Callosum? We understand the challenges you face and the importance of connecting with others who share similar experiences. Join our recurring monthly support call, a safe and supportive space designed exclusively for mothers like you.
Register Here: https://us02web.zoom.us/meeting/register/4_iUsErcSvOeK2VQbezuBA
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- October 29, 2025
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Adults Connect: Living with DCC
October 29, 2025 5:00 pm - 6:00 pm
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Facilitator: Jasmin M. Turner, MA in Clinical Psychology, NODCC Board Member 2024-2027Join us for a special call tailored to adults living with DCC. This gathering is a safe space for individuals to share experiences, find support, and explore strategies for thriving in a world that may not always understand the challenges and strengths that come with DCC. Together, we will celebrate our unique journeys, resilience, and the power of community.
Register Here: https://us02web.zoom.us/meeting/register/Zbzu2PMMT5SHvTWnTFyfvQ
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