Join the NODCC and families worldwide from September 18 to October 9, 2024, for the 2nd Annual Virtual Run, Walk & Roll! Whether you run, walk, roll, bowl, skate, treadmill, or bike, you can participate from anywhere at your own pace. For ideas on how to get involved, check out our suggestions HERE.

Register as an individual or start a fundraiser or team, and don’t forget to show your support with our exclusive Run, Walk & Roll t-shirts, sweatshirts, or hoodies, available HERE.

The Run, Walk & Roll is our organization’s most important fundraising event of the year. Over the past ten years, dedicated individuals and families have raised more than $160,000 through online fundraisers for the NODCC. We couldn’t do it without your incredible support—thank you!

From September 18 to October 9, you can participate in the Run, Walk & Roll in four ways:

  1. Set up a Facebook Fundraiser: Raising money online is easier than ever through Facebook’s built-in fundraising tools. Just go to “Fundraisers” on your Facebook menu, select “Nonprofit,” and search for the National Organization for Disorders of the Corpus Callosum.
  2. Create an Instagram Fundraiser for NODCC: To set up an Instagram fundraiser, go to your profile, tap the “+” icon, select “Fundraiser.” Pick the NODCC from Instagram’s list of nonprofits, set your fundraising goal, and write a short description. Once you’re ready, tap “Share Fundraiser” and spread the word through stories, and posts to encourage your followers to donate and share!
  3. Create a fundraising page or team on Give Lively: Join the 2024 Run, Walk & Roll event by creating your own page or team. Click HERE to get started. Then click the button that says “🙋 I Want to Fundraise for This” and choose whether you want to create your own page, create a team, or join a team.
  4. Donate Directly: Support NODCC by donating at nodcc.org/donate and share the link with your friends and family. All donations made from September 18 to October 9 will count towards the Run, Walk & Roll.

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Since 2011, donations have helped support NODCC operations and have funded programs including  DCC Conferences, website updates and maintenance, videos explaining DCC, translation of the ACC & Me book to 12 languages, attendance and education at neurology medical conferences and personal response and outreach to families through phone calls and emails. With your support, we can continue to fund the work to support people living with a DCC through education and advocacy. In addition to our existing programs, the NODCC is working to create a global patient registry that will be the standardized platform to collect information on the DCC community to be used by researchers. We need your generous contributions to fund these programs.