Local Events & Community Calls
Families and friends of the NODCC host local gatherings and fundraisers to connect those living with a disorder of the corpus callosum and support the organization. If you have a local gathering to include in the calendar or would like to host an event,
please contact Barb Fonseca at [email protected].
Upcoming Community Calls:
Full session descriptions and registration links for each call are included below.
Register for the upcoming calls and watch for details on more sessions coming soon!
*All virtual and local event times are listed in Pacific Standard Time (PST)*
- February 19, 2026
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Natural History Study - The Power of Patient Experience
February 19, 2026 5:00 pm - 6:00 pm
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Presenters: Ella Bohlman, B.S. and Lynn K. Paul, Ph.D.
Register Here: https://us02web.zoom.us/meeting/register/Z-MSZd3oQ82nQ9nWCV5DdA
“Have you ever wondered ….?”
Why don’t doctors know anything about this diagnosis?!
Is this ‘normal’ for a child with DCC?
When should we get another MRI?
When should we go back to the neurologist?
Should we get genetic testing?
Why aren’t people with DCC more similar? Does DCC really matter?
Was participating in that research study a waste of time?
What can I do to help my child succeed?
Attend the Webinar on February 19th…to learn how NODCC is working with scientists to answer these questions.
Lynn K. Paul will give an update about the status of DCC research in the United States. Ella Bohlman will present a portion of her findings from the Natural History fellowship supported by NODCC.
*This Webinar will be recorded and published on the NODCC YouTube channel. If you do not wish for your image to appear in the recording, please keep your camera turned off during the session.*
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- February 21, 2026
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Teen Talk: Connecting Teens Living with DCC
February 21, 2026
9:00 am PST / 10:00 am MST / 11:00 am CST / 12:00 pm EST
Facilitator: Jasmin M. Turner, MA in Clinical Psychology, NODCC Board Member 2024-2027 and Alexa Smith, Adult with a DCC
Register Here: https://us02web.zoom.us/meeting/register/MGst5LyZQfaCTzMnbKUXcQ
Join us for a fun “Show and Tell” Zoom session to help us get to know each other better! Please come prepared to share something: a favorite item, a fun photo, or a brief story that tells us a little about who you are. We’re excited to learn more about you!
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- February 24, 2026
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Moms' Circle: Support and Sharing for Children Living with DCC
February 24, 2026 5:00 pm - 6:00 pm
Facilitator: Jana Shaffner, Mom of C-ACCer, Career Advisor
Register Here: https://us02web.zoom.us/meeting/register/J2wPrU50ReSLjDPycbgiEA
Are you a mother navigating the unique journey of raising someone with a Disorder of the Corpus Callosum? We understand the challenges you face and the importance of connecting with others who share similar experiences. Join our recurring monthly support call, a safe and supportive space designed exclusively for mothers like you.
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- February 25, 2026
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Adults Connect: Living with DCC
February 25, 2026 5:00 pm - 6:00 pm
Facilitator: Jasmin M. Turner, MA in Clinical Psychology, NODCC Board Member 2024-2027
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Register Here: https://us02web.zoom.us/meeting/register/gJ_w4gFARgi2ovcpqQtnTA
This month, we will be talking about life hacks, simple tools, strategies, or tips that make everyday life a little easier. Come ready to share a few of your favorite hacks! By the end of the call, we’ll have a list of DCC adult life hacks we can all use.
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Local Gatherings & Fundraisers
Families and friends of the NODCC host local gatherings and fundraisers to bring together those living with a disorder of the corpus callosum and support our community. These events are a great way to meet others in your area, share experiences, and build connections.
While the NODCC helps support and promote these gatherings, they are planned and coordinated by local families. If you’re hosting an event or would like to organize one in your area, we’d love to hear from you! Email us at [email protected] to get started.
Join Our Facebook Groups:
- NODCC Region 1 – NH, MA, ME, RI, VT
- NODCC Region 2 – NY, Puerto Rico, NJ
- NODCC Region 3 – DE, MD, District of Columbia, VA, WV, PA
- NODCC Region 4 – AL, GA, KY, SC, FL, NC, TN, MS
- NODCC Region 5 – WI, OH, MN, IL, IN, MI
- NODCC Region 6 – AR, LA, NM, OK, TX
- NODCC Region 7 – IA, KS, MO, NE
- NODCC Region 8 – CO, MT, ND, SD, UT, WY
Prior NODCC Conference Recordings
Past Conferences
The Disorders of the Corpus Callosum (DCC) Conference was held yearly until 2010. The international event is now held every other year and rotates around to various regions of the country.
The NODCC extends our sincere thanks and gratitude to the families who organized family gatherings in their local areas from which the NODCC Conferences evolved.
2024 Chicago, Illinois
2022 Frisco, Texas
2018 Costa Mesa, California
2016 Chicago, Illinois
2014 Boston, Massachusetts
2012 San Antonio, Texas
2010 Santa Rosa, California
2009 Indianapolis, Indiana
2008 Cherry Hill, New Jersey
2007 Dallas, Texas
2006 Irvine California
2005 Greenville, South Carolina
2004 Madison, Wisconsin
2003 Tulsa, Oklahoma
2002 Twin Cities, Minnesota
2001 Yorba Linda, California
2000 Ashley, Ohio
1999 Hebron, Connecticut