Conference & Events

Join us for the NODCC Conference, where individuals, families, and professionals come together to share experiences, gain valuable insights, and build lasting connections.

This event offers expert-led sessions, networking opportunities, and resources to support individuals with DCC at every stage of life.

2026 NODCC Conference

We invite you to join us at the 2026 Disorders of the Corpus Callosum (DCC) Conference, which will be held Thursday, July 23, through Saturday, July 25, in Atlanta, Georgia. Online conference registration will open in early 2026.

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Local Gatherings & Fundraisers

Families and friends of the NODCC host local gatherings and fundraisers to bring together those living with a disorder of the corpus callosum and support our community. These events are a great way to meet others in your area, share experiences, and build connections.

While the NODCC helps support and promote these gatherings, they are planned and coordinated by local families. If you’re hosting an event or would like to organize one in your area, we’d love to hear from you! Email us at [email protected] to get started.

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Upcoming Community Calls:

Full session descriptions and registration links for each call are included below. Register for the upcoming calls and watch for details on more sessions coming soon!

*All virtual and local event times are listed in Pacific Standard Time (PST)*

February 14, 2026
  • New Beginnings: Support for New and Expecting Parents of Children with DCC

    February 14, 2026  11:00 am - 12:00 pm

    Facilitator: Heather Will, Admin of ACC Babies Support Groups 
    11:00 am PST / 12:00 pm MST / 1:00 pm CST / 2:00 pm EST
    Are you a new or expecting parent embarking on the unique journey of raising a child with a disorder of the corpus callosum (DCC)? We understand that this path comes with its own set of questions, concerns, and joys. Join our recurring support call tailored specifically for parents like you, where you’ll find understanding, information, and a supportive community.

    Register Here: https://us02web.zoom.us/meeting/register/iNiHGZfbRfOTXo_xcnUjiw

    See more details

February 17, 2026
  • The Power of Brain Wiring Connections Through Safe Balance Training

    February 17, 2026  5:00 pm - 6:00 pm

    5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST

    Presenter: Dan Metcalfe, Founder of Total Balance 

    Register Here: https://us02web.zoom.us/meeting/register/KBWAy2mcTQ-jHqNqZGJXfA

    Dan Metcalfe - founder of Total Balance - has trained more that 70,000 people to engage brain to body activation and growth in neurological connections. His background is fascinating, coming from playing the Lead in Andrew Lloyd Webber shows to being paralyzed on stage and told he would be disabled for life. He fully recovered, only to suffer a partial brain death while out riding a bike. He had to learn to speak again properly, physically function with loss of neural connections, and went to work discovering real life solutions for brain to body improvement. He went on to become an expert, recognized globally, for his dynamic results in helping improve quality of life theory brain focused development. One story he loves to share is about Ella, a young 13 year old with ACC, who he worked with to improve her balance. She went on to improve so much she went to dances, improved her everyday mobility and her confidence grew as it should into high school. Sue was already a very smart young lady, and she deserved the ability to walk the world she dreamed of unafraid. And the results were such a joy for her parents too. 

    Come meet Dan. As a keynote speaker he will bring knowledge, experience and trust with the energy to change lives for the better. And he will have an open Q&A toward the end. An experience that will life you up, see the best of years ahead and add quality to your life. 

     *This Webinar will be recorded and published on the NODCC YouTube channel. If you do not wish for your image to appear in the recording, please keep your camera turned off during the session.*

    See more details

February 24, 2026
  • Moms' Circle: Support and Sharing for Children Living with DCC

    February 24, 2026  5:00 pm - 6:00 pm

    Facilitator: Jana Shaffner, Mom of C-ACCer, Career Advisor 
    Are you a mother navigating the unique journey of raising someone with a Disorder of the Corpus Callosum? We understand the challenges you face and the importance of connecting with others who share similar experiences. Join our recurring monthly support call, a safe and supportive space designed exclusively for mothers like you.

    Register Here: https://us02web.zoom.us/meeting/register/J2wPrU50ReSLjDPycbgiEA

    See more details

February 25, 2026
  • Adults Connect: Living with DCC

    February 25, 2026  5:00 pm - 6:00 pm

    Facilitator: Jasmin M. Turner, MA in Clinical Psychology, NODCC Board Member 2024-2027 
    5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
    Join us for a special call tailored to adults living with DCC. This gathering is a safe space for individuals to share experiences, find support, and explore strategies for thriving in a world that may not always understand the challenges and strengths that come with DCC. Together, we will celebrate our unique journeys, resilience, and the power of community.

    Register Here: https://us02web.zoom.us/meeting/register/gJ_w4gFARgi2ovcpqQtnTA

    See more details

Prior NODCC Conference Recordings

Some of our past conference recordings are now on our YouTube channel! To view the complete playlist and explore presentations, discussions, and insights shared by the incredible speakers and panelists, click the button below. We hope these recordings serve as a valuable resource you can watch and revisit at your convenience.

Past Conferences

The Disorders of the Corpus Callosum (DCC) Conference was held yearly until 2010. The international event is now held every other year and rotates around to various regions of the country.

The NODCC extends our sincere thanks and gratitude to the families who organized family gatherings in their local areas from which the NODCC Conferences evolved.

2024 Chicago, Illinois
2022 Frisco, Texas
2018 Costa Mesa, California
2016 Chicago, Illinois
2014 Boston, Massachusetts
2012 San Antonio, Texas

2010 Santa Rosa, California
2009 Indianapolis, Indiana
2008 Cherry Hill, New Jersey
2007 Dallas, Texas
2006 Irvine California
2005 Greenville, South Carolina

2004 Madison, Wisconsin
2003 Tulsa, Oklahoma
2002 Twin Cities, Minnesota
2001 Yorba Linda, California
2000 Ashley, Ohio
1999 Hebron, Connecticut