Resources & Support
Parenting & Education Materials
Parenting a child with DCC comes with unique joys and challenges, and introducing them to new teachers or professionals can feel overwhelming. This resource section is here to help! We’ve put together suggestions for creating a personalized information packet to share with educators and treatment providers.
Feel free to use and adapt these resources in a way that best supports your child’s needs.
Education
The educational needs of children with disorders of the corpus callosum vary significantly, but the goals that each has are similar. These children want to be stimulated in creative, hands-on learning environments, in which unique learning styles are embraced and acceptance of cognitive differences are the norm.
Each child with a DCC comes to the classroom with varying degrees of neurological and developmental challenges and strengths. This diversity makes research on educational strategies very difficult. To date there are no experimentally controlled studies of academic interventions specifically for DCC. However, thanks to the contributions from NODCC members and knowledge from research with children who have similar behaviors, we have gathered a collection of tools to support effective communication between parents and the classroom teacher.
Introducing … my child!
An Introduction Folder is an effective and efficient tool to help educators and professionals understand your child and his or her diagnosis. It can include information about his or her personality, likes and dislikes, educational accomplishments, educational goals, primary concerns, and critical information for daily functioning. It should also include recommendations for maximizing your child’s performance and handling behavioral challenges. By using a folder, you have a flexible tool that can easily be updated as your child grows and amended to meet the needs of various situations. Introduction Folders can be helpful for teachers and school administrators, as well as therapists (OT, PT, Speech), Scout Troop leaders, church-school teachers, and anyone else.
Here are some topics you may want to include:
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Basic Information Packet
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Devices & Equipment Information (for children who use augmentative communication or wheelchairs)
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Education Information
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Managing Behavioral Issues
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Medical & Dietary Information
Basic Information Packet Sample Forms
You can download and print the forms as needed or use them as inspiration for developing your own materials.
Introduction Letter and Goals
Letter from Your Child
List of Parents’ Goals for the Child
Positive Student Profile form
General Information about DCC
Disorders of the Corpus Callosum brochure from NODCC
Elementary Education Info
Materials Supplied by Parent
Copy of Child’s Current IEP
List of Child’s Strengths (may include photos of things they like and/or are good at)
List of Child’s Struggles (may include photos of things that they find difficult)
Managing Behavioral Issues
Medical and Dietary Information
Medical Form
Medication Form
About My Child with DCC
Below are examples of what some of our DCC families have created. If you have one that we can add please email it to us at [email protected].
Please feel free to download these samples or create your own by downloading the the Microsoft Word documents below!
