The NODCC is managed by a volunteer Board of Directors and part-time staff. Board members are nominated and elected based on their potential to contribute to the board, either as professionals and/or as family representatives. For more information on Board service, visit the ‘Get Involved’ section of our website.

Lynn Snyder is a retired engineer who served in management and technical positions at Rolls-Royce North American Technologies Inc. for 38 years. Since retiring, he farms 700 acres in central Indiana. Lynn held engineering positions at AlliedSignal Engines, Pratt & Whitney Aircraft Engines and Allison Engine Company prior to Rolls-Royce. He received his bachelor’s, master’s and Ph.D. degrees in engineering from Purdue University. Lynn resides in Brownsburg, Indiana with his wife Dana and their adult daughter, Allison, who has complete agenesis of the corpus callosum.
David Erb is the President and CEO of The Erb Agency with Allstate Insurance Company. He is the recipient of numerous awards from Allstate including the Circle of Champion’s Award and Honor Ring Award five years in a row. In 2011, the Erb Agency was recognized as Employer of the Year by Allstate. David sits on the National Advisory Board for Allstate representing the agency force in the states of TN, KY, AR, MS and LA. He is the Chairman of the Board of Directors for the Boys and Girls Club of North Anderson County and a Board Member for Alzheimer’s Tennessee. He is a graduate of the College of Charleston and received his MBA from Georgia State University. David and his wife, Natalie, live in Norris, Tennessee with their daughter, Fiona. Their youngest daughter, Amelia, passed away in August 2015 due to a seizure caused by her complete agenesis of the corpus callosum. The Erb family started a foundation called Milly’s Wings to build inclusive playgrounds in Anderson County in memory of Amelia.

Kevin Hight is a business owner in Columbia, Tennessee. He is part owner of South East Carriers and Living Stone Freight Solutions. Kevin is a graduate of Tennessee Technological University. Kevin and his wife, Paige, have two children: Gracen and Max. Max is an adult with complete-ACC who coaches at Zion Christian Academy and is an avid sports fan of the Tennessee Vols and the Atlanta Braves.

Susan Fey is a nurse practitioner, therapist and co-owner of a private outpatient psychiatric practice in Indianapolis, IN. She has worked with children with special needs and their families for the past 40 years, facilitating coordinated, interdisciplinary care and advocating for educational accommodations as needed to optimize outcomes. Susan has a B.S.N, M.S.N and M.S.W. from Indiana University and is Certified by the National Board of Pediatric Nurse Practitioners and Associates (CPNP) and a Licensed Clinical Social Worker (LCSW) in IN. She has become familiar with DCC through working with Allison Snyder, the adult daughter of current board president, Lynn Snyder. Susan and her husband, Mike, are the parents of two adult sons who are married and live out of state with their families.

Warren Brown is a research Neuropsychologist, Professor and Director of the Travis Research Institute at the Fuller Graduate School of Psychology. He has published widely on the neuropsychology of brain disorders. He has been studying the cognitive and psychosocial outcomes of disorders of the corpus callosum for the past 25 years, publishing over 25 papers on the neuropsychology of DCC.

Al Cordasco is a retired attorney who served for 30+ years as in-house counsel for PNC Bank. He is active in his parish church and local diocese and is a member of the Knights of Columbus, a Catholic men’s organization engaged in a variety of charitable works, including helping persons with disabilities. Al and his wife, Amy, live in Cherry Hill, NJ, a suburb of Philadelphia. They have four children and four grandchildren. Their adult son, Sean, has complete ACC, works full-time for Goodwill and is very active in the family’s church.

Katherine Gee is an advocate for special needs youth and education. She has complete-ACC and learned she had the condition through an MRI in college. Katherine went to Mansfield University and Corning Community College graduating with an associate’s degree in General Studies. She was a one-on-one Teaching Assistant in special education in the local school district. Katherine has a YouTube channel that she and her husband started years ago because there wasn’t much positive information about disorders of the corpus callosum at the time. Katherine and her husband, Tom, live in New York State and have two daughters: Natalie and Lillian, who was also born with complete-ACC.
Katherine Claxton is a Licensed Clinical Social Worker with 18 years of experience working in a healthcare setting. She received her bachelor’s degree in social work from Baylor University and her master’s degree in social work from the University of Texas at Austin. Katherine currently works in private practice part time, providing psychotherapy to older adults on site at their place of residence. Katherine and her husband Dean reside in Irvine, CA with their two children: Charlotte (age 8) and Joshua (age 6). Joshua was diagnosed with hypoplasia of the corpus callosum when he was 19 months old after several delayed developmental milestones, prompting the family to become connected with the NODCC for resources and support. Katherine brings to the board her professional experience in the healthcare system, her passion for the needs of neurotypical siblings, and her unique perspective as a primary caregiver to someone with a disorder of the corpus callosum.
Elliott Sherr, M.D., Ph.D. is a professor of Neurology, Pediatrics, and Human Genetics at the University of California, San Francisco. He is a board-certified Neurologist with special qualifications in Child Neurology and has, for nearly two decades, cared for a range of children with neurodevelopmental disorders including autism, epilepsy, and children with malformations of brain development including agenesis of the corpus callosum. He has worked with the NODCC since 2003, serving on the Board and on the Scientific Advisory Board. Dr. Sherr directs a fetal neurology program at UCSF where he provides guidance to families expecting a child with a DCC. In addition to Dr. Sherr’s extensive clinical work, he runs a research group that studies the genetics of DCC.

Steven Jenkins is Senior Vice President, Operations for Prospero Health. Prospero provides in-home care and support to individuals living with serious illness. Steven has spent most of his career in the healthcare industry. He is originally from Oxford, MS and received his bachelor’s degree in Psychology at the University of Mississippi. He also holds an MBA from Union University and a Doctorate in Health Administration from the University of Mississippi Medical Center. Steven and his wife, Wendy, live in Germantown, TN, a suburb of Memphis. They are the parents of Payton, Noah and Sutton. Noah was diagnosed with partial-ACC at 5 years of age.

Kim Manning is an attorney with 30+ years of experience specializing in health care law and currently working as in-house counsel for UPMC at their operations in Williamsport, PA. Kim earned her BA and law degrees from Duquesne University, and is licensed in Georgia and Pennsylvania. Kim and her husband, David, live in Northeastern Pennsylvania with their adult son Will, who has hypoplasia of the corpus callosum. Will is finishing his high school career and they hope he will be able to move on to community volunteer work in the future.

David O’Brien has been in the IT field for the past 22 years and is currently the Global Executive Director for a large medical device manufacturer. He has served on the editorial board of SupportWorld magazine and has been recognized by Computerworld magazine as one of its Premier 100 leaders. David holds degrees in Business Administration, Computer Science, and earned his MBA from Pace University. David and his wife MaryLee, reside in Lake Forest, California where they are the proud parents of Connor, Kathryn, and Logan. Connor was diagnosed with complete-ACC while still en utero.

Kim Oren is an English teacher in Austin, Texas. She has 15 years of public school teaching experience with 11 years in special education. Kim has a B.A. from the University of Miami and M.Ed. in Special Education from Texas Tech University. Kim and her husband, Kip, are the parents of two sons with neurological disorders, one who was diagnosed with complete ACC at age 12.

Jessica Owens has many years’ experience in volunteerism and working with special needs youth. Most recently, she served as a Job Coach at her local school’s district’s transition program for adult students with special needs. Jessica has served in board and committee positions for local sports organizations and Habitat for Humanity, and she helped start her church’s special needs ministry. Jessica and her husband, Earl, live in New Braunfels, Texas, and have four children: Caitlin, Zac, Maddy, and Abby. Abby has partial-ACC and was diagnosed with leukemia at age 3 teaching Jessica much about caring for and advocating for special needs children in the hospital.

Don Peterson is retired after a 30-year career in the telecom equipment industry, mostly as a finance and general management executive. He lives in Naples, FL and Annapolis MD. He has two grown children and four grandchildren, two of which have disorders of the corpus callosum. Don is on the boards of three financial companies and works hard at his woodworking hobby whenever he can.

Traci Peterson is recently returned to school to become a nurse to learn how to better care for her girls’ complex medical issues. She previously worked as an International Trade Consultant for the World Bank, and as the Senior Administrator for Moms in Motion, a Medicaid Waiver facilitation company. Traci graduated from Villanova University with a BA in Psychology and Criminal Justice and a master’s in Criminal Justice. She also has a bachelor of science in nursing. Traci and her husband, Dan, live in Vienna, VA and are parents to three daughters: Alyssa, Ryleigh, and Cameron. Alyssa has complete-ACC and Cameron has hypoplasia of the corpus callosum.

Orly Rumberg is an attorney with 27+ years of experience specializing in health care law and currently is practicing law as a partner with the law firm Wood & Lamping in Cincinnati, Ohio. She received her bachelor’s and law degree at Case Western Reserve University. Orly’s past board involvement has focused on children’s mental health and education. Orly is a founding trustee of MindPeace, a non-profit providing a seamless system of mental health care for children and adolescents in the Greater Cincinnati area. Orly lives in Loveland, Ohio with her husband Steve and their 13 year old twins Eliana & Olam. Olam has dysgenesis of the corpus callosum and loves to ride horses, attend baseball games and eat french fries. The Rumberg Family started Olam’s Piggybank Grant Program which provides grants for assistive devices & technologies that improve the quality of life for individuals impacted by callosal disorders.

Ashley Vaillancourt has been involved with the NODCC since 2013 and currently serves as the Conference Adult Program Moderator. She has M.A.’s in Psychology and Intercultural Studies, and a Ph.D. in Clinical Psychology from Fuller Graduate School of Psychology. She served as a researcher investigating psychosocial outcomes of disorders of the corpus callosum. Ashley has dedicated her career to working with individuals with neurological or medical injuries, illness, or disabilities. She is currently completing her post-doctoral residency specializing in Neurorehabilitation. She lives in Los Angeles with her husband, Orlando.