The NODCC is managed by a volunteer Board of Directors and part-time staff. Board members are nominated and elected based on their potential to contribute to the board, either as professionals and/or as family representatives. For more information on Board service, visit the ‘Get Involved’ section of our website.

Kevin Hight is a business owner in Columbia, Tennessee. He is part owner of South East Carriers and Living Stone Freight Solutions. Kevin is a graduate of Tennessee Technological University. Kevin and his wife, Paige, have two children: Gracen and Max. Max is an adult with complete-ACC who coaches at Zion Christian Academy and is an avid sports fan of the Tennessee Vols and the Atlanta Braves.

Kim Manning is an attorney with 30+ years of experience specializing in health care law and currently working as in-house counsel for UPMC at their operations in Williamsport, PA. Kim earned her BA and law degrees from Duquesne University, and is licensed in Georgia and Pennsylvania. Kim and her husband, David, live in Northeastern Pennsylvania with their adult son Will, who has hypoplasia of the corpus callosum. Will is finishing his high school career and they hope he will be able to move on to community volunteer work in the future.
Natalie Erb is a Certified Public Accountant and a financial executive with over 30 years of experience in diverse industries, including government, nonprofit, manufacturing and business services industries. Natalie and her husband, David, live in Dallas, Texas with their oldest daughter, Fiona. Their youngest daughter, Amelia, passed away at the age of 5 over five years ago. Amelia was considered medically fragile due to multiple conditions including complete agenesis of the corpus callosum, microcephaly and epilepsy. The Erb family started a foundation called Milly’s Wings and raised $500,000 to build the first inclusive playground in Anderson County, Tennessee in memory of Amelia. Upon completion of the playground, the Erb’s donated the remaining assets to the NODCC to assist in supporting the organization’s mission over the long term.

Susan Fey is a nurse practitioner, therapist and co-owner of a private outpatient psychiatric practice in Indianapolis, IN. She has worked with children with special needs and their families for the past 40 years, facilitating coordinated, interdisciplinary care and advocating for educational accommodations as needed to optimize outcomes. Susan has a B.S.N, M.S.N and M.S.W. from Indiana University and is Certified by the National Board of Pediatric Nurse Practitioners and Associates (CPNP) and a Licensed Clinical Social Worker (LCSW) in IN. She has become familiar with DCC through working with Allison Snyder, the adult daughter of current board president, Lynn Snyder. Susan and her husband, Mike, are the parents of two adult sons who are married and live out of state with their families.

Warren Brown is a research Neuropsychologist, Professor and Director of the Travis Research Institute at the Fuller Graduate School of Psychology. He has published widely on the neuropsychology of brain disorders. He has been studying the cognitive and psychosocial outcomes of disorders of the corpus callosum for the past 25 years, publishing over 25 papers on the neuropsychology of DCC.

Al Cordasco is a retired attorney who served for 30+ years as in-house counsel for PNC Bank. He is active in his parish church and local diocese and is a member of the Knights of Columbus, a Catholic men’s organization engaged in a variety of charitable works, including helping persons with disabilities. Al and his wife, Amy, live in Cherry Hill, NJ, a suburb of Philadelphia. They have four children and four grandchildren. Their adult son, Sean, has complete ACC, works full-time for Goodwill and is very active in the family’s church.

Katherine Gee is an advocate for special needs youth and education. She has complete-ACC and learned she had the condition through an MRI in college. Katherine went to Mansfield University and Corning Community College graduating with an associate’s degree in General Studies. She was a one-on-one Teaching Assistant in special education in the local school district. Katherine has a YouTube channel that she and her husband started years ago because there wasn’t much positive information about disorders of the corpus callosum at the time. Katherine and her husband, Tom, live in New York State and have two daughters: Natalie and Lillian, who was also born with complete-ACC.
Katherine Claxton is a Licensed Clinical Social Worker with 18 years of experience working in a healthcare setting. She received her bachelor’s degree in social work from Baylor University and her master’s degree in social work from the University of Texas at Austin. Katherine currently works in private practice part time, providing psychotherapy to older adults on site at their place of residence. Katherine and her husband Dean reside in Irvine, CA with their two children: Charlotte (age 8) and Joshua (age 6). Joshua was diagnosed with hypoplasia of the corpus callosum when he was 19 months old after several delayed developmental milestones, prompting the family to become connected with the NODCC for resources and support. Katherine brings to the board her professional experience in the healthcare system, her passion for the needs of neurotypical siblings, and her unique perspective as a primary caregiver to someone with a disorder of the corpus callosum.
Elliott Sherr, M.D., Ph.D. is a professor of Neurology, Pediatrics, and Human Genetics at the University of California, San Francisco. He is a board-certified Neurologist with special qualifications in Child Neurology and has, for nearly two decades, cared for a range of children with neurodevelopmental disorders including autism, epilepsy, and children with malformations of brain development including agenesis of the corpus callosum. He has worked with the NODCC since 2003, serving on the Board and on the Scientific Advisory Board. Dr. Sherr directs a fetal neurology program at UCSF where he provides guidance to families expecting a child with a DCC. In addition to Dr. Sherr’s extensive clinical work, he runs a research group that studies the genetics of DCC.

Don Peterson is retired after a 30-year career in the telecom equipment industry, mostly as a finance and general management executive. He lives in Naples, FL and Annapolis MD. He has two grown children and four grandchildren, two of which have disorders of the corpus callosum. Don is on the boards of three financial companies and works hard at his woodworking hobby whenever he can.

Orly Rumberg is an attorney with 27+ years of experience specializing in health care law and currently is practicing law as a partner with the law firm Wood & Lamping in Cincinnati, Ohio. She received her bachelor’s and law degree at Case Western Reserve University. Orly’s past board involvement has focused on children’s mental health and education. Orly is a founding trustee of MindPeace, a non-profit providing a seamless system of mental health care for children and adolescents in the Greater Cincinnati area. Orly lives in Loveland, Ohio with her husband Steve and their 13 year old twins Eliana & Olam. Olam has dysgenesis of the corpus callosum and loves to ride horses, attend baseball games and eat french fries. The Rumberg Family started Olam’s Piggybank Grant Program which provides grants for assistive devices & technologies that improve the quality of life for individuals impacted by callosal disorders.

Ashley Vaillancourt has been involved with the NODCC since 2013 and currently serves as the Conference Adult Program Moderator. She has M.A.’s in Psychology and Intercultural Studies, and a Ph.D. in Clinical Psychology from Fuller Graduate School of Psychology. She served as a researcher investigating psychosocial outcomes of disorders of the corpus callosum. Ashley has dedicated her career to working with individuals with neurological or medical injuries, illness, or disabilities. She is currently completing her post-doctoral residency specializing in Neurorehabilitation. She lives in Los Angeles with her husband, Orlando.
Kip Oren and his wife, Kim, live in Austin, Texas. The Orens are the parents of two sons with differing neurological conditions. Their eldest son has been diagnosed with c-ACC. Kip hails from Muncie, Indiana, and is a graduate of Hillsdale College and the University of Miami School of Law. He practices commercial real-estate law in Austin, after having practiced in New York City for several years. Kip’s better half, Kim, is also a graduate of the University of Miami, and is a public-school teacher. Kip is an avid reader and a diehard Miami Hurricanes fan.
Mike Molettiere is a pastor for Village Northwest Unlimited, an organization that serves adults with disabilities, and he loves every second of it. Mike has a B.S. in Psychology from Nebraska Wesleyan University and a Master of Divinity from Bethel Seminary. He lives in Ashton, IA with his wife, Lisa, and their 4 kids: Josiah, Levi, Stella, and Ethan. Josiah, who is in 6th grade, has complete ACC and falls on the more severely impacted with development and functioning. Mike is dedicated to advocating for those who cannot advocate for themselves.

Layton Shaffner has worked in software implementation for 20 years and is currently a Director, Project Management for an HR Consulting Organization. He has a B.S. in Psychology from Texas Christian University and an MBA from the University of Texas at Arlington. Layton and his wife Jana live in Dallas where they are doing their best to keep up with their son Logan (11) and daughter Allie (7).  Logan was diagnosed with complete agenesis of the corpus callosum a few days after his birth. Layton found the NODCC soon after Logan’s birth, attended his first NODCC Conference in 2010 where he was energized by the network and knowledge of the organization and he and his family have attended every conference since. Layton is a swimmer, cyclist and avid college football and basketball fan when he isn’t keeping up with the kid’s growth and activities.

Heather Will is a former teacher who now devotes her time to providing support and encouragement to families who have recently received a diagnosis of DCC. Heather moderates many DCC Facebook support groups to help spread information about DCC around the world, so that families who receive this diagnosis will feel supported and embraced as they begin their amazing journeys. Heather has three children, and her oldest, Timothy, has P-ACC. Heather is passionate about promoting DCC education and awareness, and finds no greater joy than reassuring new DCC families that they are not alone, and showing families how to find the resources they will need.

MaryLee O’Brien has 20+ years’ experience as a Senior Business Systems Analyst and Programmer within corporate finance, investment banking, and the sales/distribution sectors of the Fortune 500. Her specialty has been building process efficiencies within organizations that improve and expand business capabilities; with an ultimate goal of enhancing member experiences. MaryLee graduated from California State University of Long Beach with a B.S. in Business Administration: Business Computer Methods. Having recently retired from corporate life, she is focusing her time raising 3 children, including son Connor, who was diagnosed with complete ACC while in utero. In addition to Connor, MaryLee and her husband David, are the proud parents of Kathryn and Logan, and the family resides in Lake Forest, California. MaryLee volunteers and assists youth-based organizations that engage, all children, in enriching and educational activities including the Boy Scouts of America (BSA) and American Heritage Girls (AHG). She has been an active member of the NODCC since 2012, assisted with the 2018 Southern California conference, and now as a board member for this special organization. In her spare time, she gardens, scrapbooks, enjoys the outdoors, loves traveling with the family, and has a passion for organizing spaces.