The NODCC is managed by a volunteer Board of Directors and part-time staff. Board members are nominated and elected based on their potential to contribute to the board, either as professionals and/or as family representatives. For more information on Board service, visit the ‘Get Involved’ section of our website.
Kevin Hight is a business owner in Columbia, Tennessee. He is part owner of South East Carriers and Living Stone Freight Solutions. Kevin is a graduate of Tennessee Technological University. Kevin and his wife, Paige, have two children: Gracen and Max. Max is an adult with complete-ACC who coaches at Zion Christian Academy and is an avid sports fan of the Tennessee Vols and the Atlanta Braves.
Susan Fey is a nurse practitioner, therapist and co-owner of a private outpatient psychiatric practice in Indianapolis, IN. She has worked with children with special needs and their families for the past 40 years, facilitating coordinated, interdisciplinary care and advocating for educational accommodations as needed to optimize outcomes. Susan has a B.S.N, M.S.N and M.S.W. from Indiana University and is Certified by the National Board of Pediatric Nurse Practitioners and Associates (CPNP) and a Licensed Clinical Social Worker (LCSW) in IN. She has become familiar with DCC through working with Allison Snyder, the adult daughter of current board president, Lynn Snyder. Susan and her husband, Mike, are the parents of two adult sons who are married and live out of state with their families.
Warren Brown is a research Neuropsychologist, Professor and Director of the Travis Research Institute at the Fuller Graduate School of Psychology. He has published widely on the neuropsychology of brain disorders. He has been studying the cognitive and psychosocial outcomes of disorders of the corpus callosum for the past 25 years, publishing over 25 papers on the neuropsychology of DCC.
Al Cordasco is a retired attorney who served for 30+ years as in-house counsel for PNC Bank. He is active in his parish church and local diocese and is a member of the Knights of Columbus, a Catholic men’s organization engaged in a variety of charitable works, including helping persons with disabilities. Al and his wife, Amy, live in Cherry Hill, NJ, a suburb of Philadelphia. They have four children and four grandchildren. Their adult son, Sean, has complete ACC, works full-time for Goodwill and is very active in the family’s church.
Don Peterson is retired after a 30-year career in the telecom equipment industry, mostly as a finance and general management executive. He lives in Naples, FL and Annapolis MD. He has two grown children and four grandchildren, two of which have disorders of the corpus callosum. Don is on the boards of three financial companies and works hard at his woodworking hobby whenever he can.
Orly Rumberg is an attorney with 27+ years of experience specializing in health care law and currently is practicing law as a partner with the law firm Wood & Lamping in Cincinnati, Ohio. She received her bachelor’s and law degree at Case Western Reserve University. Orly’s past board involvement has focused on children’s mental health and education. Orly is a founding trustee of MindPeace, a non-profit providing a seamless system of mental health care for children and adolescents in the Greater Cincinnati area. Orly lives in Loveland, Ohio with her husband Steve and their 13 year old twins Eliana & Olam. Olam has dysgenesis of the corpus callosum and loves to ride horses, attend baseball games and eat french fries. The Rumberg Family started Olam’s Piggybank Grant Program which provides grants for assistive devices & technologies that improve the quality of life for individuals impacted by callosal disorders.
Layton Shaffner has worked in software implementation for 20 years and is currently a Director, Project Management for an HR Consulting Organization. He has a B.S. in Psychology from Texas Christian University and an MBA from the University of Texas at Arlington. Layton and his wife Jana live in Dallas where they are doing their best to keep up with their son Logan (11) and daughter Allie (7). Logan was diagnosed with complete agenesis of the corpus callosum a few days after his birth. Layton found the NODCC soon after Logan’s birth, attended his first NODCC Conference in 2010 where he was energized by the network and knowledge of the organization and he and his family have attended every conference since. Layton is a swimmer, cyclist and avid college football and basketball fan when he isn’t keeping up with the kid’s growth and activities.
MaryLee O’Brien has 20+ years’ experience as a Senior Business Systems Analyst and Programmer within corporate finance, investment banking, and the sales/distribution sectors of the Fortune 500. Her specialty has been building process efficiencies within organizations that improve and expand business capabilities; with an ultimate goal of enhancing member experiences. MaryLee graduated from California State University of Long Beach with a B.S. in Business Administration: Business Computer Methods. Having recently retired from corporate life, she is focusing her time raising 3 children, including son Connor, who was diagnosed with complete ACC while in utero. In addition to Connor, MaryLee and her husband David, are the proud parents of Kathryn and Logan, and the family resides in Lake Forest, California. MaryLee volunteers and assists youth-based organizations that engage, all children, in enriching and educational activities including the Boy Scouts of America (BSA) and American Heritage Girls (AHG). She has been an active member of the NODCC since 2012, assisted with the 2018 Southern California conference, and now as a board member for this special organization. In her spare time, she gardens, scrapbooks, enjoys the outdoors, loves traveling with the family, and has a passion for organizing spaces.