Mission Statement

Our mission is to enhance the quality of life and promote opportunities for individuals with disorders of the corpus callosum.


  • Be the leading organization for gathering and disseminating information regarding disorders of the corpus callosum.
  • Focus on the cognitive, behavioral, developmental, educational, psychological, neurological, medical, and genetic issues relating to disorders of the corpus callosum.
  • Increase access to neuroimaging and accurate neurological diagnoses for all individuals, with a special sensitivity to underserved populations, for the purpose of expanding opportunities for early intervention.
  • Maintain and encourage high levels of professional ethics and scientific responsibility in management and dissemination of this information and refute faulty or inaccurate understandings of these conditions.
  • Collaborate and develop partnerships with related organizations.
  • Facilitate the acquisition and interpretation of scientific and medical knowledge about disorders of the corpus callosum, in order to advance medical, legal and societal acknowledgment of these disorders.
  • Encourage clarification of the behavioral syndromes resulting from disorders of the corpus callosum and development of appropriate and timely intervention strategies.
  • Disseminate information regarding disorders of the corpus callosum to individuals with these disorders, their family members, and professional audiences.
  • Explore legislative and policy solutions that improve the lives of individuals with disorder of the corpus callosum and enhance the work of those who support them.
  • Mobilize constituencies to assist individuals with disorders of the corpus callosum in the pursuit of their rights and services.
  • Facilitate information and resource sharing among individuals and families dealing with disorders of the corpus callosum.

Our Core Values and Guiding Principles

The NODCC is committed to uphold the following guiding principles in pursuit of our mission:

  • Respect for persons
  • Respect for families and communities of care
  • Diversity in board, staff, volunteers, and membership
  • Professional competence & integrity
  • Development of community through networking opportunities
  • Accessibility
  • Continuous improvement, learning, and refinement
  • Membership participation & teamwork
  • Compassion for the misunderstood