Barbara Fonseca, Managing Director

Barbara Fonseca serves as the Managing Director for the National Organization for Disorders of the Corpus Callosum (NODCC). Her current duties include all accounting and finances for the NODCC, assisting the Board of Directors, maintaining records, coordinating and exhibiting at medical conferences, managing the NODCC e-mail, overseeing vendor developments, assists as regional “first responder” for the family support groups, and administration. Prior to working with NODCC, Barbara worked in the sales industry. She also has her own company, handling financial accounts and payroll for other companies.

In the summer of 2001, Barbara’s family and friends sponsored a 3-day conference at the Yorba Linda Community Center. The conference addressed the issues of living with DCC, brought families and professionals together, and inspired a group of individuals to form the NODCC in 2003.

Barbara’s passion for the NODCC is very personal, as her own son, Nathan, was diagnosed with a corpus callosum disorder at eight months old. The struggle she faced in having a lack of resources and information inspired her to help create the NODCC and its community. Barbara understood the number of families who are diagnosed and have nowhere else to turn and finds joy in helping families come together for education and support.