The NODCC hosts a biennial international conference to educate and connect those living with a disorder of the corpus callosum and their loved ones, family, and friends. The conference features 40+ sessions led by professionals with experience with DCC and/or special needs topics. The event also includes researches who are studying callosal disorders or the wiring of the brain.
The NODCC 2024 Disorder of the Corpus Callosum Conference will be held June 27 – June 30 in Chicago, Illinois at the Marriott Chicago O’Hare, 8535 West Higgins Road, Chicago, IL 60631. Conference planning is in progress and all conference details, registration and lodging information will be posted here in the coming months.
If you would like us to mail conference information and registration materials to you in the future, kindly email your address to hello@nodcc.org, and we will add you to the NODCC’s mailing list.

If you would like to join the 2024 conference planning team please email Barbara Fonseca at info@nodcc.org.

We hope to see you in 2024.

Regional Events

Gatherings, events, and fundraisers in local communities are hosted by families and individuals. These events are a great way to connect with people who live close or in the same region. The NODCC support and promote these events, but local families host and coordinate the events. If you would like to host a regional gathering please email Barbara Fonseca at info@nodcc.org.

Upcoming Community Virtual Gatherings:

Fathers of the NODCC
September 21, 2023
5:00 pm PST / 6:00 pm MST/ 7:00 pm CST / 8:00 pm EST
Presenter/Facilitator: Ilunga Kalala, Member

Attention fathers: Are you navigating the unique challenges of parenting a child with agenesis of corpus callosum (ACC)? We recognize the importance of creating a space where fathers can connect, share experiences, and support one another. Join our recurring monthly support call tailored specifically for fathers of children with ACC.

From practical strategies to emotional well-being, we’ll explore various facets of parenting a child with ACC while providing a supportive and understanding environment.
Register Here

Mothers of the NODCC
September 26, 2023
5:00 pm PST / 6:00 pm MST/ 7:00 pm CST / 8:00 pm EST
Presenter/Facilitator: Deona Kalala, NODCC Board Member 2023-2026

Are you a mother navigating the unique journey of raising a child with agenesis of corpus callosum (ACC)? We understand the challenges you face and the importance of connecting with others who share similar experiences. Join our recurring monthly support call, a safe and supportive space designed exclusively for mothers like you.

Our recurring monthly support call aims to provide you with a dedicated space to connect, share, and learn from one another’s experiences. From interventions and therapies to coping strategies and self-care, we’ll explore the practical aspects of raising a child with ACC while also addressing the emotional and mental well-being of mothers.
Register Here

Grandparents of the NODCC
September 30, 2023
9:00 am PST / 10:00 am MST/ 11:00 am CST /12:00 pm EST
Presenter/Facilitator: Kathe Gee, NODCC Board Member 2020-2023

Grandparents play an invaluable role in the lives of individuals with agenesis of the corpus callosum (ACC). This webinar is designed to provide grandparents with a deeper understanding of ACC, offer insights into supporting their grandchildren, and foster a sense of community among fellow grandparents facing similar experiences.
Register Here

Expectant Parents and Parents of newborns with a DCC
September 30, 2023
11:00 am PST / 12:00 pm MST/ 1:00 pm CST /2:00 pm EST
Presenter/Facilitator: Heather Will, Admin of ACC Babies Support Groups

Are you a new or expecting parent embarking on the unique journey of raising a child with agenesis of the corpus callosum (ACC)? We understand that this path comes with its own set of questions, concerns, and joys. Join our recurring monthly support call tailored specifically for parents like you, where you’ll find understanding, information, and a supportive community.

Each month, we’ll address topics that matter most to you, providing guidance on understanding ACC, early intervention, creating a supportive environment, self-care, advocacy, and more. You’ll have the chance to engage in open discussions, ask questions, and connect with fellow parents who are on a similar path.
Register Here