Families and friends of the NODCC host local gatherings and fundraisers to connect those living with a disorder of the corpus callosum and support the organization. If you have a local gathering to include in the calendar or would like to host an event, please contact Barb Fonseca at info@nodcc.org.
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Northeastern Regional Meeting

7:30AM – 8PM
Saturday, August 2nd, 2025
Painted Point, New York

Join us for a day of community, learning, and support. Families and individuals from Regions 1, 2, and 3 are invited—but everyone is welcome!
Meet other families, hear from adults with DCC, and attend insightful professional lectures. Childcare will be available..

Register now at https://livingwithacc.my.canva.site/ 

For questions, contact Katherine at livingwithacc@gmail.com. We can’t wait to see you there!

Grandparents’ Wisdom: Navigating the DCC Journey
May 31, July 26, September 27, November 29
8:30 am PST / 9:30 am MST / 10:30 am CST / 11:30 am EST
Facilitator: Kathe Gee, NODCC Board Member 2017-2023
Grandparents play an invaluable role in the lives of individuals with Disorders of the Corpus Callosum (DCC). This webinar is designed to provide grandparents with a deeper understanding of DCC, offer insights into supporting their grandchildren, and foster a sense of community among fellow grandparents facing similar experiences.
Click HERE to Register

Moms’ Circle: Support and Sharing for Children Living with DCC
April 29, May 27, June 24, July 29, August 26, September 30, October 28, November 19
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Facilitator: Deona Kalala, NODCC President 2024-2026, Jana Shaffner, Mom of C-ACCer, Career Advisor
Are you a mother navigating the unique journey of raising someone with a Disorder of the Corpus Callosum? We understand the challenges you face and the importance of connecting with others who share similar experiences. Join our recurring monthly support call, a safe and supportive space designed exclusively for mothers like you.
Click HERE to Register
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New Beginnings: Support for New and Expecting Parents of Children with DCC
April 12, June 14, August 9, October 11
11:00 am PST / 12:00 pm MST / 1:00 pm CST / 2:00 pm EST
Facilitator: Heather Will, Admin of ACC Babies Support Groups
Are you a new or expecting parent embarking on the unique journey of raising a child with a disorder of the corpus callosum (DCC)? We understand that this path comes with its own set of questions, concerns, and joys. Join our recurring support call tailored specifically for parents like you, where you’ll find understanding, information, and a supportive community.
Click HERE to Register
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Dads’ Forum: Strength and Support for Families with DCC
April 28, June 30, August 25, October 27
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Facilitator: Ilunga Kalala, Attorney 
Attention fathers: Are you navigating the unique challenges of parenting someone with a disorder of the corpus callosum (DCC)? We recognize the importance of creating a space where fathers can connect, share experiences, and support one another. Join our recurring support call tailored specifically for fathers of children with DCC.
Click HERE to Register
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Teen Talk: Connecting Teens Living with DCC
April 26
8:00 am PST / 9:00 am MST / 10:00 am CST / 11:00 am EST
Facilitator: Kathe Gee, NODCC Board Member 2017-2023
Are you a teen living with DCC? This interactive meeting is designed for you! We’ll explore topics that matter to teens, such as school, friendships, and self-expression, in the context of DCC. Join to connect with your peers who understand what it’s like to live with DCC. Don’t miss this chance to be a part of an empowering community dedicated to making the teenage years with DCC a positive and fulfilling experience
Click HERE to Register
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Kids with DCC Crew: Fun & Friendship Call (Ages 7-12)
April 26
10:00 am PST / 11:00 am MST / 12:00 pm CST / 1:00 pm EST
Facilitator: Kathe Gee, NODCC Board Member 2017-2023
Hey, awesome kids with Disorders of the Corpus Callosum (DCC), ages 7 to 12! Join our special call where you can hang out, show and tell, and make new friends who get what it’s like to have DCC. We’ll have fun activities, share our stories about life with DCC, and create a strong and supportive community together. Whether you want to chat, laugh, or just be yourself, this call is all about making memories and building friendships. Come be a part of the Kids with DCC Crew – we can’t wait to meet you!
Click HERE to Register
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Parenting with DCC: Adult DCCers that have Kids of Their Own
April 30
5:00 pm PST / 6:00 pm MST / 7:00 pm CST / 8:00 pm EST
Facilitator: Kathe Gee, NODCC Board Member 2017-2023
This community call is a safe space for adults with a disorder of the corpus callosum (DCC) to connect, share experiences, and offer support as they navigate parenting. Whether you’re expecting, raising young children, or parenting teens, join us for encouragement, practical tips, and meaningful discussions with others who understand your journey.
Click HERE to Register
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2024 NODCC Conference Recordings

All of the 2024 conference recordings are now on our YouTube channel! To view the complete playlist and explore presentations, discussions, and insights shared by the incredible speakers and panelists, click HERE. We hope these recordings serve as a valuable resource you can watch and revisit at your convenience.

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