Connecting people affected by disorders of the corpus callosum is at the heart of what we do at the NODCC. We are excited to increase and improve our virtual community sessions and offer presentations and discussions with experts.
If you would like to suggest a topic for a virtual session, please contact our Community Committee at community@nodcc.org.
Upcoming Community Calls:
Connecting people affected by disorders of the corpus callosum is at the heart of what we do at the NODCC. We are excited to increase and improve our community sessions this year and offer presentations and discussions with experts.
Full session descriptions and registration links for each call are included below. Register for the upcoming calls and watch for details on more sessions coming soon!
Fathers of the NODCC
September 21, 2023
5:00 pm PST / 6:00 pm MST/ 7:00 pm CST / 8:00 pm EST
Presenter/Facilitator: Ilunga Kalala, Member
Attention fathers: Are you navigating the unique challenges of parenting a child with agenesis of corpus callosum (ACC)? We recognize the importance of creating a space where fathers can connect, share experiences, and support one another. Join our recurring monthly support call tailored specifically for fathers of children with ACC.
From practical strategies to emotional well-being, we’ll explore various facets of parenting a child with ACC while providing a supportive and understanding environment.
Register Here
Mothers of the NODCC
September 26, 2023
5:00 pm PST / 6:00 pm MST/ 7:00 pm CST / 8:00 pm EST
Presenter/Facilitator: Deona Kalala, NODCC Board Member 2023-2026
Are you a mother navigating the unique journey of raising a child with agenesis of corpus callosum (ACC)? We understand the challenges you face and the importance of connecting with others who share similar experiences. Join our recurring monthly support call, a safe and supportive space designed exclusively for mothers like you.
Our recurring monthly support call aims to provide you with a dedicated space to connect, share, and learn from one another’s experiences. From interventions and therapies to coping strategies and self-care, we’ll explore the practical aspects of raising a child with ACC while also addressing the emotional and mental well-being of mothers.
Register Here
Grandparents of the NODCC
September 30, 2023
9:00 am PST / 10:00 am MST/ 11:00 am CST /12:00 pm EST
Presenter/Facilitator: Kathe Gee, NODCC Board Member 2020-2023
Grandparents play an invaluable role in the lives of individuals with agenesis of the corpus callosum (ACC). This webinar is designed to provide grandparents with a deeper understanding of ACC, offer insights into supporting their grandchildren, and foster a sense of community among fellow grandparents facing similar experiences.
Register Here
Expectant Parents and Parents of newborns with a DCC
September 30, 2023
11:00 am PST / 12:00 pm MST/ 1:00 pm CST /2:00 pm EST
Presenter/Facilitator: Heather Will, Admin of ACC Babies Support Groups
Are you a new or expecting parent embarking on the unique journey of raising a child with agenesis of the corpus callosum (ACC)? We understand that this path comes with its own set of questions, concerns, and joys. Join our recurring monthly support call tailored specifically for parents like you, where you’ll find understanding, information, and a supportive community.
Each month, we’ll address topics that matter most to you, providing guidance on understanding ACC, early intervention, creating a supportive environment, self-care, advocacy, and more. You’ll have the chance to engage in open discussions, ask questions, and connect with fellow parents who are on a similar path.
Register Here
Australian Disorders of the Corpus Callosum (AusDoCC) is hosting an event November 24-27 at University College, Melbourne, VIC.
Click here to find out more information about the event.
If you would like to suggest a topic for a virtual session, please contact our Community Committee at community@nodcc.org