Meet Jamie: Embracing Differences After an Unexpected Diagnosis
By Katy Brieger Jamie is a 30-year-old preschool teacher of [...]
Meet Matt: A Photographer Pursuing His Dreams
By Melodi Colvin Matt has never let his diagnosis of [...]
Meet The Southern Mess!
Beth Davis is a self-proclaimed mess. But this small-town Florida [...]
The Importance of Perspective in Living with DCC
By Timothy Yep What exactly is Agenesis of the Corpus [...]
A New Bicycle for Emmy through Olam’s Piggybank Grant Program
As a little girl Emmy loved to ride her tricycle. [...]
How the NODCC is Reaching Medical Professionals and Impacting Research
When receiving a diagnosis of any condition, parents and patients [...]
A Grandmother’s Journey and Advice
Our family consists of myself, my husband, Cassie (Joel’s Momma), [...]
New Facebook Group to Connect Grandparents & Extended Family
By Jennifer Little For the last several NODCC conferences, I [...]
A Boy and his Dog: The Journey of Welcoming a Service Dog into the Family
[This story was written for the blog and first appeared [...]