Enrolling in a Research Study: The ACC Infant Experience
Enrolling in a research study is a great way to [...]
Meet Kelsie: A Day in Her Busy Life
By Courtney McDonald Each morning Kelsie wakes up in her [...]
Meet Dirk: The Creative Craftsman
by Morgan Blakley There is often much confusion surrounding disorders [...]
Meet Jamie: Embracing Differences After an Unexpected Diagnosis
By Katy Brieger Jamie is a 30-year-old preschool teacher of [...]
Meet Matt: A Photographer Pursuing His Dreams
By Melodi Colvin Matt has never let his diagnosis of [...]
Meet The Southern Mess!
Beth Davis is a self-proclaimed mess. But this small-town Florida [...]
The Importance of Perspective in Living with DCC
By Timothy Yep What exactly is Agenesis of the Corpus [...]
A New Bicycle for Emmy through Olam’s Piggybank Grant Program
As a little girl Emmy loved to ride her tricycle. [...]
How the NODCC is Reaching Medical Professionals and Impacting Research
When receiving a diagnosis of any condition, parents and patients [...]