NODCC Board of Director’s Committee


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Thank you for volunteering to serve on a NODCC Board Committee for a one-year term from the date of signature. The functions of the various NODCC Board Committees are outlined below. Kindly select the committees in which you would like to participate.
Communications Committee Community Committee
Development Committee Governance Committee
We understand in the beginning there may be a learning curve for you. Be assured your Committee Chair and other committee members will be available to assist you if you have any questions.
And, you may bring expertise we do not have that could be of great benefit to the committee and to the organization in general. Please do not hesitate to share your experiences, ideas and suggestions.
Chairs are NODCC Board Directors and they meet as an Executive Committee monthly with the officers of the Board to report on the fulfillment of the committees’ standing responsibilities and special projects.
Committees typically meet monthly by teleconference, or bi-monthly dependent upon their current assignments.
Kindly visit the NODCC’s website and review the information contained in the About section, most especially the organization’s history, mission, core values and guiding principles.
We sincerely appreciate your participation in our efforts to raise the public profile, understanding and acceptance of disorders of the corpus callosum and those who are living with this disorder.
Kindly sign and return this letter to If you have any questions, do not hesitate to call or send me an email.
Warm regards,
Barbara Fonseca
NODCC Program Director

NODCC Committee Volunteer Commitment
I agree to serve as an active committee member for a one-year term and promise to support the organization’s mission, and to uphold and abide by the organization’s policies.

Name (please print)   Signature   Date
NODCC Board of Director’s Committee Responsibilities
Revised April 16, 2016
Communications Committee
The Communication Committee is responsible for the management of printed, electronic and published
materials, website content, social media and public relations.
Specific duties include:
  • Creation of an annual communications plan and calendar
  • Communications/Materials
    • Monthly eNewsletters ensuring current, informative content in all sections
    • Periodic eBlasts with quick, important announcements
    • Brochures
    • Booklets
    • Educational DVDs
    • Corporate Video
    • Internet Videos
    • Media Kit
  • Collaborate with Development and other Committees in writing assignments
  • Social Media
    • Management of the NODCC’s Facebook newsfeed and monitoring of other DCC newsfeeds
    • Periodic announcement postings on Twitter, ACC Listserv and other social networking sites
  • Website (note administration is responsible for all back-end functionality and posting content)
    • Monitor the website to ensure proper functioning and advise administration if any problems
    • Create and update content for all sections posting articles of interest and current relevance
    • Monitor the interactive sections; gather and post resources in the Resource Library
    • Monitor the personal stories in Our Stories
    • Monitor the Discussion Boards & Networking Center
  • Public Relations
    • Create awareness for the organization through communications, events, etc.
    • Procure media outlets for educational stories on DCC and the promotion of the NODCC
    • Promote the conference and other organizational events in local media
Community Committee
The Community Committee is responsible for creating avenues of interface and support between the organization and its membership including development of regional communities, networking programs, resources and educational materials.
Specific duties include:
  • Regional Communities
    The Regional Community Support Team is designed to serve as local area first responders (requires a team leader and telephone tree), and provides support connection to families/individuals in the local area.
    • Initial Crisis
      React immediately to newly diagnosed families/individuals via telephone, email, or in-person (central office is the first responder who connects inquirer to appropriate Regional Community Team)
    • Connection
      Serve as a reference center to connect families/individuals to one another either geographically, by age, by gender, and/or by diagnosis
    • Activities
      Organize local area formal and informal discussion meetings, family gatherings, and support the Development Committee in regional fundraising events
  • NODCC supports the Regional Communities with
    • Suggestions on how to form an autonomous group or gathering
    • Ideas for conducting formal and informal meetings and arranging group activities/gatherings
    • Supply member contact information (maintain all liability releases on file in the Central Office)
    • Post Regional Community contact information and announcements on the NODCC website
    • Mail or electronic communications regarding Regional Community events and fundraisers
  • Resources
    • Develop and maintain the First Responder electronic resource materials on the website
    • Develop and maintain the electronic Resource/Educational Packets on the website (containing information, strategies, techniques e.g. Early Intervention, Elementary School/IEP, Understanding Adolescence, Adult Transition, Alternative Therapies, Toileting, Dental/Eye/Hearing, DCC Behaviors, etc.)
    • Develop and maintain a resource guide to local service providers by state
    • Develop and maintain a listing of local financial aid resources by state
    • Develop and maintain a listing of local educational/legal advocacy resources by state
    • Develop professional educational podcasts and webinars
Governance Committee
The Corporate Documents committee is responsible for ensuring the organization’s management and legal
documents are monitored and current.
Specific duties include:
  • Monthly monitoring and updates to the Annual Plan Dashboard based on Executive Committee Chair reports
  • Responsible for presenting the Annual Plan at the biannual Board meeting with a SWOT analysis, and ensuring appropriate updates, revisions and additions are incorporated into the plan
  • Annual review of the NODCC’s Bylaws & Policies with recommendations for revisions as required
  • Annual review of the Board Member Orientation and Manual with appropriate re-writes
  • Biannual maintenance of the NODCC Committee Responsibilities document
Development Committee
The Development Committee is responsible for procuring funding for the operation of the organization, conferences and special projects through grants, membership drives, individual/corporate donations, signature fundraisers and events, regional fundraisers and events.
Specific duties include:
  • Creation of an annual operations fundraising plan and calendar
  • Creation of a conference fundraising plan and calendar in the appropriate year
  • Create the NODCC annual report for distribution and posting on the website
  • Manage annual membership drive including writing printed membership letter/newsletter
  • Manage annual fundraising campaign including writing donation letter
  • Manage annual Thanksgiving/holiday letter including an overview of organizational activities
  • Donor Acquisition & Stewardship
    • Encourage membership to take advantage of company matching funds programs
    • Cultivate prospective large donors through families/friends/local businesses
    • Determine stewardship guidelines for each giving level with a dedicated appreciation program
    • Develop corporate sponsor and celebrity partnerships (referrals, correspondence, meetings)
    • Recruit in-kind services
  • Regional Community Fundraising
    • Institute Regional Community Fundraising teams (develop an administrative template to explain the process and to ensure commitment and consistency)
    • Promote and assist in Regional Community fundraising activities
    • Create multiple event templates posted to the NODCC website (e.g. golf tournament, local restaurant sponsor night, gift wrapping event, race/walk, community yard sale)
    • Maintain the fundraising section on the NODCC website
    • Write a monthly update on fundraising activities for the eNewsletter


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Phone: (714) 747-0063
Fax: (714) 693-0808
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