The NODCC Scientific Advisory Board facilitates connections between researchers and individuals with disorders of the corpus callosum by helping recruit for studies and by approving scientifically sound and important research to be conducted at the NODCC Conference. The Scientific Advisory Board also provides expert advice to physicians, psychologists, and other professionals treating individuals with DCC, updates NODCC members regarding recent scientific advances, and encourages new lines of research and collaboration that will aid our understanding of DCC.
|Paul Guilbault, M.D.
As a family physician and parent of a child with DCC, Dr. Guilbault serves as chair of the SAB. He graduated from the University of Notre Dame with a bachelor’s degree in Mathematics and Life Sciences. Dr. Guilbault attended LSU Medical School in New Orleans and received the Gerald R. Gehringer Award for outstanding graduate for Family Medicine. He is a family physician with a private practice in Mandeville, LA. Dr. Guilbault and his wife, Joanna, are parents to three sons, Matthew, Evan, and Reid (who was born with complete agenesis of the corpus callosum).
|Warren Brown M.A., Ph.D.
Dr. Brown is a research Neuropsychologist, Professor, and Director of the Travis Research Institute at the Fuller Graduate School of Psychology. He has published widely on the neuropsychology of brain disorders. He has been studying the cognitive and psychosocial outcomes of DCC for the past 25 years, publishing over 25 papers on the neuropsychology of DCC.
|Elliott Sherr, M.D., Ph.D.
Dr. Sherr is a professor of Neurology, Pediatrics and Human Genetics at the University of California, San Francisco. He is a board-certified Neurologist with special qualifications in Child Neurology and has, for nearly two decades, cared for a range of children with neurodevelopmental disorders, including autism, epilepsy and children with malformations of brain development, including agenesis of the corpus callosum. He has worked with the NODCC since 2003, serving on the Board and on the Scientific Advisory Board. Dr. Sherr directs a fetal neurology program at UCSF where he provides guidance to families expecting a child with a DCC. In addition to Dr. Sherr’s extensive clinical work, he runs a research group that studies the genetics of DCC.
Susan Fey is a nurse practitioner, therapist and co-owner of a private outpatient psychiatric practice in Indianapolis, IN. She has worked with children with special needs and their families for the past 40 years, facilitating coordinated, interdisciplinary care and advocating for educational accommodations as needed to optimize outcomes. Susan has a B.S.N, M.S.N and M.S.W. from Indiana University and is Certified by the National Board of Pediatric Nurse Practitioners and Associates (CPNP) and a Licensed Clinical Social Worker (LCSW) in IN.
|Paul Moes, M.A., Ph.D.
Dr. Moes is a Professor of Psychology and Neuroscience at Calvin University in Grand Rapids, Michigan. He served on the first board of directors for NODCC and collaborated with Gary and Kathy Schilmoeller in a large survey of individuals with AgCC that was published in 2009. He has also collaborated with Dr. Malcolm Jeeves, Dr. Warren Brown and others investigating the role of interhemispheric communication in AgCC and typically developing individuals.